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Old Aug 17th 2008 | 1:12 am
  #346  
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Default Re: The Thyroid Thread

Originally Posted by PaulandNic
Yeah mostly money worries really as Nic was a casual and the 6 weeks with a broken ankle didn't help, then losing her job I don't think went down well either.

Still, on the up I hope as we've both at last got full time jobs with prosects ... ... and hopefully some disposable to get her thyroid problems sorted out proper. I think Nic currently doesn't have much faith in the medicine as she's seeing NO improvement. Still sleeps heaps, and all the other side effects.

I'm a light'ish smoker and Nic smoked when we met but gave up when first pregnant and has only been a REAL rare smoker one night in every blue moon, a couple a year kinda thing. Well, I think she's so desperate to be losing weight that she's started smoking a bit recently ... Ok, it IS very little, but i guess it just shows her state of mind at the mo with it all.

Still, one day we'll get it sorted I'm sure ...
Same here, i gave up smoking when first pregnant and there have been lots of time when i could have needed one but just cant especially for my health reasons.
Sorry about the ankle and job, i didn't know as i haven't been on BE for a long time as been having a bad time with health and things lately.
 
Old Aug 17th 2008 | 9:21 am
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Default Re: The Thyroid Thread

Originally Posted by PaulandNic
Yeah mostly money worries really as Nic was a casual and the 6 weeks with a broken ankle didn't help, then losing her job I don't think went down well either.

Still, on the up I hope as we've both at last got full time jobs with prosects ... ... and hopefully some disposable to get her thyroid problems sorted out proper. I think Nic currently doesn't have much faith in the medicine as she's seeing NO improvement. Still sleeps heaps, and all the other side effects.

I'm a light'ish smoker and Nic smoked when we met but gave up when first pregnant and has only been a REAL rare smoker one night in every blue moon, a couple a year kinda thing. Well, I think she's so desperate to be losing weight that she's started smoking a bit recently ... Ok, it IS very little, but i guess it just shows her state of mind at the mo with it all.

Still, one day we'll get it sorted I'm sure ...
You're going to love me, but smoking is bad for the thyroid.

Can't win, eh?
 
Old Aug 17th 2008 | 9:48 am
  #348  
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Default Re: The Thyroid Thread

Originally Posted by TiddlyPom
You're going to love me, but smoking is bad for the thyroid.

Can't win, eh?
Coulda guessed to be honest, there isn't much it's good for!
 
Old Aug 17th 2008 | 10:20 am
  #349  
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Default Re: The Thyroid Thread

Originally Posted by PaulandNic
This way we're waiting till Nic starts her new job () and then gonna go see Donna's recommendation in Springbrook. I think it just makes sense, and when we're back to an almost 'TINK' status, we should be able to afford it finally ...

She's been on 100mcg instead of the prev 200mcg now for over a week. In the first few days (coincidentally or not ... ) she had a bit of an energy boost and did a few hours ironing, amongst other things, but of recent she's back to sq1 really and sleeping a lot (most of yesterday) and a fair bit today ... No weight loss or mood for anthing much.

I said to her earlier for the time being maybe go back to GP and ask for EVERYTHING to be tested! ... antibodies and all! ... they can only say no!

In under a month from now we'll hopefully have 2 incomes again as I say and will finally be able to put health higher up the list ...

I don't seem to be on here much of recent, so will throw into the bag that I'm still happy with my job and approaching the 3 month mark so hopefully a permanent soon ... I've recently weaned of the happy tabs and am giving SJW (you know) a go, nothing to lose! ...

All good! ...
Bugger ,dont go to Springbrook,its the wrong direction.I would say make sure you have a full set of thyroid tests to take with you as it will save you time and money in the longrun as she wont have to order them.I would also recommend you book soon as i know she has a big waiting list.Go prepared,have your lists of symptoms at hand,she good,but comes across as really disorganized.The more leg work you do the better.Has Nic got any amalgamam fillings as she is a great believer in toxicity poisioning,so much so that ive just had mine all removed,well the last lot come out wed
good luck
donna
 
Old Aug 17th 2008 | 8:26 pm
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Default Re: The Thyroid Thread

Originally Posted by PaulandNic

I said to her earlier for the time being maybe go back to GP and ask for EVERYTHING to be tested! ... antibodies and all! ... they can only say no!

Actually, if she's suffering from a thyroid condition, they can't say no. If they do, you have serious cause to complain to higher authorities.
 
Old Aug 17th 2008 | 8:32 pm
  #351  
 
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Default Re: The Thyroid Thread

Originally Posted by ausi dream
Hi everyone long time since i have posted.
Feeling a bit low at the moment as things with emigrating are not going very well.
And as for my health that has gone to pot, feeling very up and down with the thyroid.
As you all know i have hashimoto's thyroidism.
Think the problem with how i am feeling at the moment come from taking the HRT that i have been on for a year, not that i am that old only very early fourtys.
It has started to make me think if it is the HRT that is changing all the hormones for the thyroid to kick out.
But i must admit the HRT that i am on is suited to me and has been fine, but just seem to get additional problems.
Back at the hospital again on Thursday to see what they can do for me.
This thread is a life line, you all give so much help and support.
Hey Aus.
Sorry you're having problems with the whole issue. Certainly any stress can cause your adrenal system to play up, so extra support is important for you right now.
It could be your HRT, but then it could be adrenal issues too, so perhaps pursue an aggressive treatment of those for a few weeks and see if it helps.
Perhaps you could ask at your appt at the hospital if they have tested your adrenals, plus thyroid levels of course.
Any help you need, just ask.

Hugs.

A
 
Old Aug 17th 2008 | 8:34 pm
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Default Re: The Thyroid Thread

Originally Posted by PaulandNic
Coulda guessed to be honest, there isn't much it's good for!
No, indeed.
 
Old Aug 17th 2008 | 10:01 pm
  #353  
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Default Re: The Thyroid Thread

Originally Posted by donna
Bugger ,dont go to Springbrook,its the wrong direction.I would say make sure you have a full set of thyroid tests to take with you as it will save you time and money in the longrun as she wont have to order them.I would also recommend you book soon as i know she has a big waiting list.Go prepared,have your lists of symptoms at hand,she good,but comes across as really disorganized.The more leg work you do the better.Has Nic got any amalgamam fillings as she is a great believer in toxicity poisioning,so much so that ive just had mine all removed,well the last lot come out wed
good luck
donna
... I forgot to edit, yeah SpringWOOD! ...

Originally Posted by TiddlyPom
Actually, if she's suffering from a thyroid condition, they can't say no. If they do, you have serious cause to complain to higher authorities.
Noted, thanks ...
 
Old Aug 18th 2008 | 7:02 am
  #354  
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Default Re: The Thyroid Thread

Originally Posted by TiddlyPom
Hey Aus.
Sorry you're having problems with the whole issue. Certainly any stress can cause your adrenal system to play up, so extra support is important for you right now.
It could be your HRT, but then it could be adrenal issues too, so perhaps pursue an aggressive treatment of those for a few weeks and see if it helps.
Perhaps you could ask at your appt at the hospital if they have tested your adrenals, plus thyroid levels of course.
Any help you need, just ask.

Hugs.

A
Thank you TiddlyPom for your support, i must admit i am feeling very tired and a bit drained this last week.
Appetite for eating seems to go up and down as well.
Am starting to worry a bit now as to what the hospital appt on Thur's holds in store for me.
Don't know much about the adrenal system, any information would be greatly appreciated.
Thanks
aus. P.S forgot to mention i have just had my thyroid levels checked and they seem ok.

Last edited by ausi dream; Aug 18th 2008 at 7:04 am.
 
Old Aug 18th 2008 | 7:55 am
  #355  
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Default Re: The Thyroid Thread

Originally Posted by ausi dream
Thank you TiddlyPom for your support, i must admit i am feeling very tired and a bit drained this last week.
Appetite for eating seems to go up and down as well.
Am starting to worry a bit now as to what the hospital appt on Thur's holds in store for me.
Don't know much about the adrenal system, any information would be greatly appreciated.
Thanks
aus. P.S forgot to mention i have just had my thyroid levels checked and they seem ok.
Some info here:
http://www.patient.co.uk/showdoc/27000110/
 
Old Aug 18th 2008 | 9:23 am
  #356  
 
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Default Re: The Thyroid Thread

Originally Posted by ausi dream
Thank you TiddlyPom for your support, i must admit i am feeling very tired and a bit drained this last week.
Appetite for eating seems to go up and down as well.
Am starting to worry a bit now as to what the hospital appt on Thur's holds in store for me.
Don't know much about the adrenal system, any information would be greatly appreciated.
Thanks
aus. P.S forgot to mention i have just had my thyroid levels checked and they seem ok.
I think the most user friendly page is probably here at Dr Lam's site:

http://www.drlam.com/a3r_brief_in_do...al_fatigue.cfm

Hope that helps hon.

And when you say 'ok', were your levels just in range, or nicely low at where you feel best?
 
Old Aug 18th 2008 | 9:32 am
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Default Re: The Thyroid Thread

Originally Posted by TiddlyPom
I think the most user friendly page is probably here at Dr Lam's site:

http://www.drlam.com/a3r_brief_in_do...al_fatigue.cfm
Call me a cynic....but I find it difficult to take such websites for real when they have spelling errors. If they can't get the basics correct.......

Try www.emedicine.com
 
Old Aug 18th 2008 | 9:39 am
  #358  
 
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Default Re: The Thyroid Thread

Originally Posted by Ozzidoc
Call me a cynic....but I find it difficult to take such websites for real when they have spelling errors. If they can't get the basics correct.......

Try www.emedicine.com
The site's a perfectly good conveyor of information, regardless of their spelling prowess and it's user friendly with excellent advice.
If you don't like it, feel free to not read it.
 
Old Aug 18th 2008 | 5:09 pm
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Default Re: The Thyroid Thread

Originally Posted by TiddlyPom
The site's a perfectly good conveyor of information, regardless of their spelling prowess and it's user friendly with excellent advice.
If you don't like it, feel free to not read it.
I hear you.....but then next week I'm in clinic, and one of my patients brings up the fact that she "read it on the internet so it must be true". Which forms the basis of a discussion about evidenced-based medicine, which should last at least 15 minutes...but we only have less than that in total with the patient.

www.emedicine.com is evidenced based. The contributors are recognised as world leaders in their field, and provide robust referencing.

I ask anyone who is serious about their health and obtaining information about conditions which affect them, make sure that they understand the terms "critical appraisal" and "analytical appraisal" (they are the same thing -but critical sounds negative, and it's positive too) and to read the book "How to Read a Paper" by Trisha Greenhalgh. (http://www.amazon.co.uk/exec/obidos/...offeeuk3919-21)
 
Old Aug 18th 2008 | 8:43 pm
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Default Re: The Thyroid Thread

Originally Posted by Ozzidoc
I hear you.....but then next week I'm in clinic, and one of my patients brings up the fact that she "read it on the internet so it must be true". Which forms the basis of a discussion about evidenced-based medicine, which should last at least 15 minutes...but we only have less than that in total with the patient.

www.emedicine.com is evidenced based. The contributors are recognised as world leaders in their field, and provide robust referencing.

I ask anyone who is serious about their health and obtaining information about conditions which affect them, make sure that they understand the terms "critical appraisal" and "analytical appraisal" (they are the same thing -but critical sounds negative, and it's positive too) and to read the book "How to Read a Paper" by Trisha Greenhalgh. (http://www.amazon.co.uk/exec/obidos/...offeeuk3919-21)
I don't think anyone here is so stupid as to have 'read it on the internet therefore it must be true' quite frankly.

This is a shared info thread, based on years of other people's experience in a condition which many of us share and which many of us have had, and continue to have, short thrift from the medical profession. It's not meant to replace medical knowledge or the advice of a doctor, nor does it claim to do that.... and nowhere on here is there anything other than shared opinions. If people therefore take that information and use it to get a better form of healthcare, then this is all for the good. I use eMedicine myself. It's a good site.

It's only a thread on a message board and no-one here claims to be anything other than a person passing on things which they know have worked for them and many others.

There are other experts in adrenal fatigue who are world leaders in their field and also provide robust referencing, but for the average joe on the street, something which is within their limits of comprehension is better than leaving with a big fat ?.

A well informed doctor is quite able to help someone in their 5 minutes. Mine chose to tell me he'd deign to treat me once I got 'a lot worse'. Not a good use of time, in my humble opinion. If your time as a doctor is limited, one would think it would be more productively used, especially following through on the 'Do No Harm' ethos Hippocrates instilled in the profession.
So I'm sorry, I don't count that 'low on time' thing as an excuse, especially when you're paying for your doctor's time as many of us do in Australia.
Ironically, once I'd done my research, formulated my questions properly, following advice from other thyroid people on thyroid forums, (expert patients, labelled as so by their doctors), taken along a photo of me before, fuelled with advice on how to push for treatment, I was taken seriously by the new doctor I chose to see. I wouldn't have been able to do that without the internet!

I'm sure given your advanced warning and that it's only now Tuesday and your clinic is next week, you'll be able to provide some nicely researched evidence to show your patient that she's wrong, or not, as the case may be. Problem solved.
Whilst the internet can be a pain, I'm also sure that people's own research can mean they can work with their doctor, rather than just expecting everything to come from the doc. I don't know any GP who has time to keep up with everything in General Medicine. I've given my GP articles from the internet he hadn't seen. Surely everyone wins? - but I think it takes a humble sort of person who doesn't have an ego problem to see their patients as being able enough to help themselves too.

This is only a thread on a message board. I'm sure you've got a lot to contribute, but don't belittle the contributions from people who've had to battle for their health when you're well treated and have never had issues with your T4-only therapy. It's not so easy for people whom this doesn't work for and that's why this thread exists.
It's also not a 'get at' your profession. I've never even met you, never mind sought your medical opinion, and I'm not so shallow or unintelligent as to tar all doctors as 'useless' in this field.
As you've seen from Paul and Nic's experience, medication has an 'end user' responsibility as you well know... and proves the point that we are all responsible for our own health at the end of the day. Those of us who choose to take our own research paths - well that's down to us.

If you've truly got quibbles with the information provided in this thread, feel free to give us the actual clinical objections, rather than just the spelling mistakes. I would like to see what your objections are, then we can have a decent discussion based on knowledge rather than picking at a spelling error.

We're all responsible for our own health here, but it helps to have the support of those in the same boat.

Last edited by TiddlyPom; Aug 18th 2008 at 9:00 pm.
 


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