The Thyroid Thread
#616
Auntie Fa










Joined: Nov 2006
Posts: 7,344
From: Seattle











I love this thread. 
Whilst my doc in Singapore used to tell me I need to eat every two hours - even just a handful of nuts - I'm rarely hungry. I eat because I know I need to, rather than I want to.
I've never been a snacker. I'm still not - I have breakfast and then often realise about 5pm that I haven't eaten anything all day. I guess not working = no routine, which doesn't help.
I thought this all came about when I got my intolerances diagnosed and eating just became too hard, rather than the pleasure it used to be (our social life revolved around dining out, not going on the p*&s!). Now I see how common it is.
And the worst thing is - being overweight and having people assume I stuff my face all day.
Whilst my doc in Singapore used to tell me I need to eat every two hours - even just a handful of nuts - I'm rarely hungry. I eat because I know I need to, rather than I want to.
I've never been a snacker. I'm still not - I have breakfast and then often realise about 5pm that I haven't eaten anything all day. I guess not working = no routine, which doesn't help.
I thought this all came about when I got my intolerances diagnosed and eating just became too hard, rather than the pleasure it used to be (our social life revolved around dining out, not going on the p*&s!). Now I see how common it is.
And the worst thing is - being overweight and having people assume I stuff my face all day.
#617










Joined: Oct 2007
Posts: 9,668

Tossers!
I loved the bit when my now ex tells me I was 'intolerable to live with'. (Direct quote)
No shit!
I love constructive criticism.
#618
Auntie Fa










Joined: Nov 2006
Posts: 7,344
From: Seattle











Ah yes, that old chestnut. I regularly have that discussion on another forum, where some people think that being overweight means you are stupid, lazy, and an unnecessary burden on the health system.
#619
My memory is also bad, it seems to be the running joke of the family about me not remembering things.
It is in my family to, before we moved to Australia everytime i left my parents house my Dad would run down a checklist to make sure i had everything
It is in my family to, before we moved to Australia everytime i left my parents house my Dad would run down a checklist to make sure i had everything
#621
When we leave for school in the morning my 9 year old daughter says "have you got the keys mum?" 

she knows me far too well!!
Usually its a case of "I know I had them 2 minutes ago...must be here somewhere!!!"


she knows me far too well!!
Usually its a case of "I know I had them 2 minutes ago...must be here somewhere!!!"
#624
Its actually the Hashis that causes the problems rather than the other way around. It is very tempting to think that taking the thyroid out would heal everything...but sadly (certainly in my case anyway) thats not always the case. By having no thyroid at all it means that I will ALWAYS be hypothyroid...for life. Generally this is the case for most thyroid patients anyway, but not all. Some do go into remission with adequate treatment and manage to stop the Hashis in its tracks. There is also the risk associated with the operation - that being vocal damage (I had that) and parathyroid damage (I also had that). The nerve for my vocal chord was cut during the operation and they didnt know if I would ever recover my voice fully. This was an absolutely awful time as you really dont realise how much you use your voice, not just for talking. I couldn't sing, laugh, cough etc etc...horrible. Thankfully I was lucky enough to get my voice back and although its not as strong as it was, I am one of the lucky ones. One of my parathyroids (which control calcium levels in the body) was removed during the operation as it was enlarged, and the others went into shock for a while...so I was on huge amounts of calcium for a few months post op too. My parathyroids did kick start to a certain degree, but I am taking calcium for life now too. Calcium deficiency can bring with it a whole host of other issues, and can be very dangerous if not treated, so it is something to consider strongly. My thyroid was huge by the time it was removed (12 cms long) and so I had no choice but to have it removed (although it was at my request). I didnt suffer any physical symptoms of choking etc strangely enough, but the emotional symptoms were far worse (and I still deal with them now, just not as bad). My antibodies were never tested prior to the op so I didnt actually know that I had Hashis until the histology report came in. I was always given the 'your labs are normal' malarky!! Idiots!
That all said...there are also many people who do very well after having their thyroids removed and consider it the best thing they've ever done...its a difficult choice and only one that you can make for yourself sadly.
Heres a good forum for you to ask other peoples opinion:
http://www.healthboards.com/boards/f...play.php?f=122
Theres lots of people there who've had thyroidectomies for one reason or another.
That all said...there are also many people who do very well after having their thyroids removed and consider it the best thing they've ever done...its a difficult choice and only one that you can make for yourself sadly.
Heres a good forum for you to ask other peoples opinion:
http://www.healthboards.com/boards/f...play.php?f=122
Theres lots of people there who've had thyroidectomies for one reason or another.
There are certainly lots of aspect that i had not taken into account.
I had read that there could be a possibility it could cause vocal damage but i had not taken into account the extent of damage.
I think that in my case, with the extent of conditions that i have it would probably not be in my best interest to have that done.
I dont know how long ago you had your thyroid removed, but by the sounds of it you have been through a lot and coped with so much.
I hope you are making a speedy recovery.
#625
Its a gorgeous day in Sydney today so we're heading to the river...hope I can remember how to get home afterwards!! haha
have a great weekend all
have a great weekend all
#626
Any of you thyroid people located in Perth? A poster on one of the forums I use in in search of a good doc there...recommendations needed please 
Another friend of mine is also looking for a good thyroid doc in Tassie - thats proving extremely hard. I'm trying to find a compounding chemist there, so that I can ask which doctors use their services...but even thats proving impossible!

Another friend of mine is also looking for a good thyroid doc in Tassie - thats proving extremely hard. I'm trying to find a compounding chemist there, so that I can ask which doctors use their services...but even thats proving impossible!
#627










Joined: Oct 2007
Posts: 9,668

Any of you thyroid people located in Perth? A poster on one of the forums I use in in search of a good doc there...recommendations needed please 
Another friend of mine is also looking for a good thyroid doc in Tassie - thats proving extremely hard. I'm trying to find a compounding chemist there, so that I can ask which doctors use their services...but even thats proving impossible!

Another friend of mine is also looking for a good thyroid doc in Tassie - thats proving extremely hard. I'm trying to find a compounding chemist there, so that I can ask which doctors use their services...but even thats proving impossible!
#628
Yep I've told her that...only problem is that her anxiety is so bad (FT3 totally in the shed) that shes terrified to do anything! Just getting a new doctor is scaring the crap out of her so the thought of flying to the main land is just too much!
#630
Not sure to be honest - she very rarely talks about him. Shes very very caught up in her anxiety and rarely talks about anything other than symptoms etc...quite sad and quite frustrating that I cant get through to her to take things into her own hands. I know from bitter experience that its very hard to do that though when you're so scared and your head is so muddled.



