Flynns update, its a rollercoaster!
Nov 23rd 2006, 10:03 pm
#76
High in the Dandenongs
Thread Starter
Joined: Apr 2003
Location: Listening to Puffing Billy
Posts: 9,183
Re: Flynns update, its a rollercoaster!
PAH!
yesterday was Bit of an uppy downy day.
Was told i could hold him today after he'd had his antibiotics, but then the IV line wouldn't flush. The Dr decided to change it but after he'd been to a half hour lecture. Then Flynn had a huge B2 (where his heart rate drops very low and he doesn't pick up) and A1 (where he forgets to breathe) all at once. They shook him and i was like HELLO!!!!!! nothing! So the pinched his foot and he eventually sprang back to life.
Very common and they grow out of it apparently, but it nearly gave me a heart attack!
Then the Dr came back and tried several sites for the new IV but eventually had to go in his other foot (the right one has a large central line in it for nutrients) then be wrapped in a big splint. Then the vampire came round for 21 day foetal screening (or something) tried stabbing his hands, no luck so began ripping off the tape and splint on his newly placed IV line and stabbed his heel to pieces. then the splint had to be all renewed and stuck back on again. He was so distressed after all of this i was then told, sorry no cuddle today. I fought back the tears very hard. It was his three week birthday and all i wanted was to give him a big cuddle and tell him how proud of him i am of him.
Sorry, but I am feeling hacked off . As the Aussies say, I'm over it
Just called and hes had a good night but did have some desats (thats how this all kicked off last friday!!) and they were doing his ultra sound when i called. The decision to lumbar him is being made this afternoon. Half of me just wants them to do it so he doesn't go down hill rapidly like he did last weekend. The other half of me is praying for the vetricle to be smaller and they leave him alone (in my heart i just know its gonna be bigger)
Keep the prayers and vibes coming guys, he still needs all of us pulling for him.
Thanks, us allxxxx
yesterday was Bit of an uppy downy day.
Was told i could hold him today after he'd had his antibiotics, but then the IV line wouldn't flush. The Dr decided to change it but after he'd been to a half hour lecture. Then Flynn had a huge B2 (where his heart rate drops very low and he doesn't pick up) and A1 (where he forgets to breathe) all at once. They shook him and i was like HELLO!!!!!! nothing! So the pinched his foot and he eventually sprang back to life.
Very common and they grow out of it apparently, but it nearly gave me a heart attack!
Then the Dr came back and tried several sites for the new IV but eventually had to go in his other foot (the right one has a large central line in it for nutrients) then be wrapped in a big splint. Then the vampire came round for 21 day foetal screening (or something) tried stabbing his hands, no luck so began ripping off the tape and splint on his newly placed IV line and stabbed his heel to pieces. then the splint had to be all renewed and stuck back on again. He was so distressed after all of this i was then told, sorry no cuddle today. I fought back the tears very hard. It was his three week birthday and all i wanted was to give him a big cuddle and tell him how proud of him i am of him.
Sorry, but I am feeling hacked off . As the Aussies say, I'm over it
Just called and hes had a good night but did have some desats (thats how this all kicked off last friday!!) and they were doing his ultra sound when i called. The decision to lumbar him is being made this afternoon. Half of me just wants them to do it so he doesn't go down hill rapidly like he did last weekend. The other half of me is praying for the vetricle to be smaller and they leave him alone (in my heart i just know its gonna be bigger)
Keep the prayers and vibes coming guys, he still needs all of us pulling for him.
Thanks, us allxxxx
Nov 23rd 2006, 10:40 pm
#77
Account Closed
Joined: Mar 2006
Posts: 10,158
Re: Flynns update, its a rollercoaster!
Oh crap hevs... I remember having to hold my 3 week old son still so they could lumbar him... It was so terrible, I can't imagine how you're doing with it all so frequently and I'm not surprised he's having a tough time... His irritation from all the needles must be huge.
I really hope you get to hold him soon... sounds like he really needs some skin to skin contact and actual human warmth to help him through this.
Hang in there hevs. We're praying for you all.
I really hope you get to hold him soon... sounds like he really needs some skin to skin contact and actual human warmth to help him through this.
Hang in there hevs. We're praying for you all.
Nov 23rd 2006, 10:43 pm
#78
Cup of tea, Father?
Joined: Oct 2004
Location: Underground, overground, wombling free
Posts: 6,895
Re: Flynns update, its a rollercoaster!
(((Hugs)))
Lots more positive thoughts to Flynn. And to all of you, H.
I hope you're able to get that hug soon - you both deserve it.
Lots more positive thoughts to Flynn. And to all of you, H.
I hope you're able to get that hug soon - you both deserve it.
Nov 23rd 2006, 10:52 pm
#79
Homeward bound
Joined: Nov 2006
Location: Costa Del Sol
Posts: 722
Re: Flynns update, its a rollercoaster!
Breaking my heart for you all and wee Flynn. I've told my little girl about Flynn and shown her his picture, and she wanted me to tell you that she will pray for him too.
Nic
Nic
Nov 23rd 2006, 11:37 pm
#80
BE Enthusiast
Joined: Sep 2004
Location: Somerly, Perth
Posts: 652
Re: Flynns update, its a rollercoaster!
TELL the consultant you both need a cuddle, bonding is as important as any treatment, It will also calm Flynn down and his sats and heart rate may improve.
Good luck
Di
Good luck
Di
Nov 23rd 2006, 11:52 pm
#81
BE Forum Addict
Joined: May 2003
Location: GC
Posts: 3,353
Re: Flynns update, its a rollercoaster!
Originally Posted by hevs
PAH!
yesterday was Bit of an uppy downy day.
Was told i could hold him today after he'd had his antibiotics, but then the IV line wouldn't flush. The Dr decided to change it but after he'd been to a half hour lecture. Then Flynn had a huge B2 (where his heart rate drops very low and he doesn't pick up) and A1 (where he forgets to breathe) all at once. They shook him and i was like HELLO!!!!!! nothing! So the pinched his foot and he eventually sprang back to life.
Very common and they grow out of it apparently, but it nearly gave me a heart attack!
Then the Dr came back and tried several sites for the new IV but eventually had to go in his other foot (the right one has a large central line in it for nutrients) then be wrapped in a big splint. Then the vampire came round for 21 day foetal screening (or something) tried stabbing his hands, no luck so began ripping off the tape and splint on his newly placed IV line and stabbed his heel to pieces. then the splint had to be all renewed and stuck back on again. He was so distressed after all of this i was then told, sorry no cuddle today. I fought back the tears very hard. It was his three week birthday and all i wanted was to give him a big cuddle and tell him how proud of him i am of him.
Sorry, but I am feeling hacked off . As the Aussies say, I'm over it
Just called and hes had a good night but did have some desats (thats how this all kicked off last friday!!) and they were doing his ultra sound when i called. The decision to lumbar him is being made this afternoon. Half of me just wants them to do it so he doesn't go down hill rapidly like he did last weekend. The other half of me is praying for the vetricle to be smaller and they leave him alone (in my heart i just know its gonna be bigger)
Keep the prayers and vibes coming guys, he still needs all of us pulling for him.
Thanks, us allxxxx
yesterday was Bit of an uppy downy day.
Was told i could hold him today after he'd had his antibiotics, but then the IV line wouldn't flush. The Dr decided to change it but after he'd been to a half hour lecture. Then Flynn had a huge B2 (where his heart rate drops very low and he doesn't pick up) and A1 (where he forgets to breathe) all at once. They shook him and i was like HELLO!!!!!! nothing! So the pinched his foot and he eventually sprang back to life.
Very common and they grow out of it apparently, but it nearly gave me a heart attack!
Then the Dr came back and tried several sites for the new IV but eventually had to go in his other foot (the right one has a large central line in it for nutrients) then be wrapped in a big splint. Then the vampire came round for 21 day foetal screening (or something) tried stabbing his hands, no luck so began ripping off the tape and splint on his newly placed IV line and stabbed his heel to pieces. then the splint had to be all renewed and stuck back on again. He was so distressed after all of this i was then told, sorry no cuddle today. I fought back the tears very hard. It was his three week birthday and all i wanted was to give him a big cuddle and tell him how proud of him i am of him.
Sorry, but I am feeling hacked off . As the Aussies say, I'm over it
Just called and hes had a good night but did have some desats (thats how this all kicked off last friday!!) and they were doing his ultra sound when i called. The decision to lumbar him is being made this afternoon. Half of me just wants them to do it so he doesn't go down hill rapidly like he did last weekend. The other half of me is praying for the vetricle to be smaller and they leave him alone (in my heart i just know its gonna be bigger)
Keep the prayers and vibes coming guys, he still needs all of us pulling for him.
Thanks, us allxxxx
thinking about you
hugsxxxx
Nov 24th 2006, 12:13 am
#82
Lost in BE Cyberspace
Joined: Apr 2004
Posts: 10,375
Re: Flynns update, its a rollercoaster!
Originally Posted by hevs
PAH!
yesterday was Bit of an uppy downy day.
Was told i could hold him today after he'd had his antibiotics, but then the IV line wouldn't flush. The Dr decided to change it but after he'd been to a half hour lecture. Then Flynn had a huge B2 (where his heart rate drops very low and he doesn't pick up) and A1 (where he forgets to breathe) all at once. They shook him and i was like HELLO!!!!!! nothing! So the pinched his foot and he eventually sprang back to life.
Very common and they grow out of it apparently, but it nearly gave me a heart attack!
Then the Dr came back and tried several sites for the new IV but eventually had to go in his other foot (the right one has a large central line in it for nutrients) then be wrapped in a big splint. Then the vampire came round for 21 day foetal screening (or something) tried stabbing his hands, no luck so began ripping off the tape and splint on his newly placed IV line and stabbed his heel to pieces. then the splint had to be all renewed and stuck back on again. He was so distressed after all of this i was then told, sorry no cuddle today. I fought back the tears very hard. It was his three week birthday and all i wanted was to give him a big cuddle and tell him how proud of him i am of him.
Sorry, but I am feeling hacked off . As the Aussies say, I'm over it
Just called and hes had a good night but did have some desats (thats how this all kicked off last friday!!) and they were doing his ultra sound when i called. The decision to lumbar him is being made this afternoon. Half of me just wants them to do it so he doesn't go down hill rapidly like he did last weekend. The other half of me is praying for the vetricle to be smaller and they leave him alone (in my heart i just know its gonna be bigger)
Keep the prayers and vibes coming guys, he still needs all of us pulling for him.
Thanks, us allxxxx
yesterday was Bit of an uppy downy day.
Was told i could hold him today after he'd had his antibiotics, but then the IV line wouldn't flush. The Dr decided to change it but after he'd been to a half hour lecture. Then Flynn had a huge B2 (where his heart rate drops very low and he doesn't pick up) and A1 (where he forgets to breathe) all at once. They shook him and i was like HELLO!!!!!! nothing! So the pinched his foot and he eventually sprang back to life.
Very common and they grow out of it apparently, but it nearly gave me a heart attack!
Then the Dr came back and tried several sites for the new IV but eventually had to go in his other foot (the right one has a large central line in it for nutrients) then be wrapped in a big splint. Then the vampire came round for 21 day foetal screening (or something) tried stabbing his hands, no luck so began ripping off the tape and splint on his newly placed IV line and stabbed his heel to pieces. then the splint had to be all renewed and stuck back on again. He was so distressed after all of this i was then told, sorry no cuddle today. I fought back the tears very hard. It was his three week birthday and all i wanted was to give him a big cuddle and tell him how proud of him i am of him.
Sorry, but I am feeling hacked off . As the Aussies say, I'm over it
Just called and hes had a good night but did have some desats (thats how this all kicked off last friday!!) and they were doing his ultra sound when i called. The decision to lumbar him is being made this afternoon. Half of me just wants them to do it so he doesn't go down hill rapidly like he did last weekend. The other half of me is praying for the vetricle to be smaller and they leave him alone (in my heart i just know its gonna be bigger)
Keep the prayers and vibes coming guys, he still needs all of us pulling for him.
Thanks, us allxxxx
but keep postive as he grows the ups will be more than the downs. Sending you a PM re a few hospital services you may not be aware of to help families in this type of situation.
Nov 24th 2006, 2:17 am
#83
Account Closed
Joined: Mar 2006
Posts: 10,158
Re: Flynns update, its a rollercoaster!
Originally Posted by harveyhare
TELL the consultant you both need a cuddle, bonding is as important as any treatment, It will also calm Flynn down and his sats and heart rate may improve.
Good luck
Di
Good luck
Di
Yes, get the consultant to give you a cuddle, hevs. Tell him it's important.
Nov 24th 2006, 2:19 am
#84
BE Forum Addict
Joined: Dec 2005
Location: waikanae
Posts: 4,148
Re: Flynns update, its a rollercoaster!
Originally Posted by hevs
PAH!
yesterday was Bit of an uppy downy day.
Was told i could hold him today after he'd had his antibiotics, but then the IV line wouldn't flush. The Dr decided to change it but after he'd been to a half hour lecture. Then Flynn had a huge B2 (where his heart rate drops very low and he doesn't pick up) and A1 (where he forgets to breathe) all at once. They shook him and i was like HELLO!!!!!! nothing! So the pinched his foot and he eventually sprang back to life.
Very common and they grow out of it apparently, but it nearly gave me a heart attack!
Then the Dr came back and tried several sites for the new IV but eventually had to go in his other foot (the right one has a large central line in it for nutrients) then be wrapped in a big splint. Then the vampire came round for 21 day foetal screening (or something) tried stabbing his hands, no luck so began ripping off the tape and splint on his newly placed IV line and stabbed his heel to pieces. then the splint had to be all renewed and stuck back on again. He was so distressed after all of this i was then told, sorry no cuddle today. I fought back the tears very hard. It was his three week birthday and all i wanted was to give him a big cuddle and tell him how proud of him i am of him.
Sorry, but I am feeling hacked off . As the Aussies say, I'm over it
Just called and hes had a good night but did have some desats (thats how this all kicked off last friday!!) and they were doing his ultra sound when i called. The decision to lumbar him is being made this afternoon. Half of me just wants them to do it so he doesn't go down hill rapidly like he did last weekend. The other half of me is praying for the vetricle to be smaller and they leave him alone (in my heart i just know its gonna be bigger)
Keep the prayers and vibes coming guys, he still needs all of us pulling for him.
Thanks, us allxxxx
yesterday was Bit of an uppy downy day.
Was told i could hold him today after he'd had his antibiotics, but then the IV line wouldn't flush. The Dr decided to change it but after he'd been to a half hour lecture. Then Flynn had a huge B2 (where his heart rate drops very low and he doesn't pick up) and A1 (where he forgets to breathe) all at once. They shook him and i was like HELLO!!!!!! nothing! So the pinched his foot and he eventually sprang back to life.
Very common and they grow out of it apparently, but it nearly gave me a heart attack!
Then the Dr came back and tried several sites for the new IV but eventually had to go in his other foot (the right one has a large central line in it for nutrients) then be wrapped in a big splint. Then the vampire came round for 21 day foetal screening (or something) tried stabbing his hands, no luck so began ripping off the tape and splint on his newly placed IV line and stabbed his heel to pieces. then the splint had to be all renewed and stuck back on again. He was so distressed after all of this i was then told, sorry no cuddle today. I fought back the tears very hard. It was his three week birthday and all i wanted was to give him a big cuddle and tell him how proud of him i am of him.
Sorry, but I am feeling hacked off . As the Aussies say, I'm over it
Just called and hes had a good night but did have some desats (thats how this all kicked off last friday!!) and they were doing his ultra sound when i called. The decision to lumbar him is being made this afternoon. Half of me just wants them to do it so he doesn't go down hill rapidly like he did last weekend. The other half of me is praying for the vetricle to be smaller and they leave him alone (in my heart i just know its gonna be bigger)
Keep the prayers and vibes coming guys, he still needs all of us pulling for him.
Thanks, us allxxxx
more prayers & good vibes for you all, hope you get a cuddle soon.
take care xxx
Nov 24th 2006, 2:21 am
#85
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Joined: Sep 2005
Location: Eldorado (near Wangaratta) 'country Victoria'
Posts: 1,451
Re: Flynns update, its a rollercoaster!
Hevs I read this and I just haven't a clue what to say. He sounds like a fighter which is what will get him through this. All of our positive thoughts and prayers are still heading your way, thanks for taking the time to let us know how it is all going (at least you are getting an early view of how he will be as a teenager with all of the stroppiness and refusing to do things by the book 
).
Keep strong.
Nicky xx
).Keep strong.
Nicky xx
Nov 24th 2006, 3:57 am
#86
Forum Regular
Joined: Nov 2004
Location: Gippsland, Victoria since April '05 and loving it! (ex-Belgium)
Posts: 70
Re: Flynns update, its a rollercoaster!
I'm still praying for you guys, my heart just sinks when I read your stories, I have no idea how you do it. I hope you get to give him that big cuddle very soon xxxxx
Els
Els
Nov 24th 2006, 5:45 am
#87
Lapine Member
Joined: Nov 2004
Location: Austin, Texas in my own little world
Posts: 21,691
Re: Flynns update, its a rollercoaster!
Prayers winging your way.... how incredibly strong you all have had to be.
Nov 24th 2006, 6:26 am
#88
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Joined: Oct 2006
Location: Australind WA
Posts: 1,155
Re: Flynns update, its a rollercoaster!
My thoughts are prayers are with you all,
hang in there guys.
Sarah x
hang in there guys.
Sarah x
Nov 24th 2006, 6:41 am
#89
Fighting my corner
Joined: Aug 2005
Location: Adelaide, South Australia
Posts: 11,948
Re: Flynns update, its a rollercoaster!
Hang in there, Hevs. I know it's a rough trot at the moment, but things can - and will! - get better.
Nov 24th 2006, 6:49 am
#90
Joined: Sep 2005
Location: Mount Tamborine
Posts: 17,426
Re: Flynns update, its a rollercoaster!
(((((((++++++++++++++++vibes++++++++++++++++++)))) )))
(((((((((hhhhhhhuuuuuuuuuuggggggssssssssssssssssss sss)))))))))))
Hope you get a cuddle soon xx
(((((((((hhhhhhhuuuuuuuuuuggggggssssssssssssssssss sss)))))))))))
Hope you get a cuddle soon xx