Flynns update, its a rollercoaster!
Nov 27th 2006 | 12:39 am
#106
BE Forum Addict
Joined: Jan 2004
Posts: 4,146
From: Halls Head, WA
Re: Flynns update, its a rollercoaster!
That all sounds good, hopefully he's now over the worst and will just concentrate on getting stronger and ready to give you all hell 
Nov 27th 2006 | 12:41 am
#107
Joined: Sep 2005
Posts: 17,426
From: Mount Tamborine
Re: Flynns update, its a rollercoaster!
Ooh ooh this is sounding a bit better Hev 
Keeping those positive thoughts coming
Keeping those positive thoughts coming
Nov 27th 2006 | 12:47 am
#108
broken but got a visa! :
Joined: Apr 2006
Posts: 1,515
From: seaford,adelaide
Re: Flynns update, its a rollercoaster!
its a long winding road, but thank goodness hes come round a 'bend'.
thinking of you all everyday and sending positive vibes, you keep strong Hevs, take care,
xxxx
thinking of you all everyday and sending positive vibes, you keep strong Hevs, take care,
xxxx
Nov 27th 2006 | 1:17 am
#109
BE Forum Addict
Joined: Mar 2004
Posts: 3,134
From: Ridgewood , Perth
Re: Flynns update, its a rollercoaster!
Bloody hell ! your nerves must be in shreads ! sounds like every day he keeps on getting stronger !
Must be in his genes
All the best
Nicky & John x
Must be in his genes
All the best
Nicky & John x
Nov 27th 2006 | 1:27 am
#110
......in the sand !
Joined: Nov 2004
Posts: 4,421
From: Perth, WA :)
Re: Flynns update, its a rollercoaster!
Originally Posted by hevs
My baby's beautiful big eyes were fully open and, for the first time in 11 very long heart wrenching days, was looking around and was managing to charm the pants out of his lady Dr!! 
Nov 27th 2006 | 1:43 am
#111
Home and Happy
Joined: Dec 2002
Posts: 94,307
From: Keep true friends and puppets close, trust no-one else...
Re: Flynns update, its a rollercoaster!
Positive news Hevs, fantastic One step at a time, love, and we are all still praying for you
One step at a time, love, and we are all still praying for you
Nov 27th 2006 | 2:14 am
#112
Joined: Jul 2004
Posts: 12,063
Re: Flynns update, its a rollercoaster!
Originally Posted by hevs
My baby's beautiful big eyes were fully open and, for the first time in 11 very long heart wrenching days, was looking around and was managing to charm the pants out of his lady Dr!!
C'mon baby Flynn keep up the good work
Nov 27th 2006 | 3:33 am
#113
Lost in BE Cyberspace
Joined: Apr 2006
Posts: 7,005
From: Ballarat
Re: Flynns update, its a rollercoaster!
I'm sure Flynn's got a guardian angel keeping him safe, but just in case i'll keep saying the prayers for you all
Mandy
Mandy
Nov 27th 2006 | 3:39 am
#114
Sunny Sydney
Joined: Aug 2005
Posts: 6,241
From: Sydney
Re: Flynns update, its a rollercoaster!
We're all thinking of you and your family every day Hevs. fingers crossed for more "bends" and hopefully a corner or two soon
Gill
Gill
Nov 27th 2006 | 4:54 am
#115
Fighting my corner
Joined: Aug 2005
Posts: 11,948
From: Adelaide, South Australia
Re: Flynns update, its a rollercoaster!
Originally Posted by hevs
Well yesterday was another eventful day in paradise 
Loads more braddys, stopped feeds again, more green stuff when they pulled back up the tube. Also soooo much mucus when they suctioned him, it was disgusting, sooner he learns to blow his nose and hoyk up the better!
Loads more blood tests, but still inconclusive. The main thought being immaturity of the respiratory system. Also, because of where the bleed was it could be that its breaking down/ causing swelling and causing the messages to the brain to be a bit scrambled.
Clara (my named guru Dr and christener of "Monkey") had a good look at him yesterday and told me that after seeing how ill he was last sunday, this was much better. She is convinced that he just needs time to get himself sorted. I had been told earlier that the heart duct was shut, Clara's not convinced as she said she could still hear a murmur, but it was quieter. (my jury's out on that one!) She said they have tested everything and theres nothing scary and not to keep blaming everything on the bleed either. wacko.gif She decided to start his feeds at 8pm last night at 2ml an hour and just keep him on that for a good few hours and take baby steps....
As ever, she seems to have made a good call. I just called the hospital and hes had a slightly better night and only one braddy this am. The same nurse has got him this am and she said he seems a bit better today. Feeds are still 2ml. No air or green stuff on draw back and tummy remains soft.
Cranial Ultra sound this am so we will perhaps know when the lumbar is to be done sometime today............................................. .
That was yesterday, this is today......
I don't know about a corner, but i think we have turned a slight bend today?!?!?!
He is tolerating his baby 2 ml per hour feeds and is only having braddys at feed time. His ventricle is the same size (next C.U. thursday)
My baby's beautiful big eyes were fully open and, for the first time in 11 very long heart wrenching days, was looking around and was managing to charm the pants out of his lady Dr!!
Loads more braddys, stopped feeds again, more green stuff when they pulled back up the tube. Also soooo much mucus when they suctioned him, it was disgusting, sooner he learns to blow his nose and hoyk up the better!
Loads more blood tests, but still inconclusive. The main thought being immaturity of the respiratory system. Also, because of where the bleed was it could be that its breaking down/ causing swelling and causing the messages to the brain to be a bit scrambled.
Clara (my named guru Dr and christener of "Monkey") had a good look at him yesterday and told me that after seeing how ill he was last sunday, this was much better. She is convinced that he just needs time to get himself sorted. I had been told earlier that the heart duct was shut, Clara's not convinced as she said she could still hear a murmur, but it was quieter. (my jury's out on that one!) She said they have tested everything and theres nothing scary and not to keep blaming everything on the bleed either. wacko.gif She decided to start his feeds at 8pm last night at 2ml an hour and just keep him on that for a good few hours and take baby steps....
As ever, she seems to have made a good call. I just called the hospital and hes had a slightly better night and only one braddy this am. The same nurse has got him this am and she said he seems a bit better today. Feeds are still 2ml. No air or green stuff on draw back and tummy remains soft.
Cranial Ultra sound this am so we will perhaps know when the lumbar is to be done sometime today............................................. .
That was yesterday, this is today......
I don't know about a corner, but i think we have turned a slight bend today?!?!?!
He is tolerating his baby 2 ml per hour feeds and is only having braddys at feed time. His ventricle is the same size (next C.U. thursday)
My baby's beautiful big eyes were fully open and, for the first time in 11 very long heart wrenching days, was looking around and was managing to charm the pants out of his lady Dr!!
Nov 27th 2006 | 5:00 am
#116
BE Forum Addict
Joined: Oct 2006
Posts: 1,155
From: Australind WA
Re: Flynns update, its a rollercoaster!
Thinking of you still and will keep hoping that one bend turns in to another and another.
take care
sarah
take care
sarah
Nov 27th 2006 | 5:43 am
#117
visa holder
Joined: Jan 2006
Posts: 1,964
From: Thornlands, Bayside
Re: Flynns update, its a rollercoaster!
Great news, come on little Flynn we are all thinking about you.
Joex
Joex
Nov 27th 2006 | 5:49 am
#118
Lost in BE Cyberspace
Joined: Feb 2006
Posts: 25,277
From: Gold Coast
Re: Flynns update, its a rollercoaster!
Originally Posted by hevs
Well yesterday was another eventful day in paradise
Loads more braddys, stopped feeds again, more green stuff when they pulled back up the tube. Also soooo much mucus when they suctioned him, it was disgusting, sooner he learns to blow his nose and hoyk up the better!
Loads more blood tests, but still inconclusive. The main thought being immaturity of the respiratory system. Also, because of where the bleed was it could be that its breaking down/ causing swelling and causing the messages to the brain to be a bit scrambled.
Clara (my named guru Dr and christener of "Monkey") had a good look at him yesterday and told me that after seeing how ill he was last sunday, this was much better. She is convinced that he just needs time to get himself sorted. I had been told earlier that the heart duct was shut, Clara's not convinced as she said she could still hear a murmur, but it was quieter. (my jury's out on that one!) She said they have tested everything and theres nothing scary and not to keep blaming everything on the bleed either. wacko.gif She decided to start his feeds at 8pm last night at 2ml an hour and just keep him on that for a good few hours and take baby steps....
As ever, she seems to have made a good call. I just called the hospital and hes had a slightly better night and only one braddy this am. The same nurse has got him this am and she said he seems a bit better today. Feeds are still 2ml. No air or green stuff on draw back and tummy remains soft.
Cranial Ultra sound this am so we will perhaps know when the lumbar is to be done sometime today............................................. .
That was yesterday, this is today......
I don't know about a corner, but i think we have turned a slight bend today?!?!?!
He is tolerating his baby 2 ml per hour feeds and is only having braddys at feed time. His ventricle is the same size (next C.U. thursday)
My baby's beautiful big eyes were fully open and, for the first time in 11 very long heart wrenching days, was looking around and was managing to charm the pants out of his lady Dr!!
Loads more braddys, stopped feeds again, more green stuff when they pulled back up the tube. Also soooo much mucus when they suctioned him, it was disgusting, sooner he learns to blow his nose and hoyk up the better!
Loads more blood tests, but still inconclusive. The main thought being immaturity of the respiratory system. Also, because of where the bleed was it could be that its breaking down/ causing swelling and causing the messages to the brain to be a bit scrambled.
Clara (my named guru Dr and christener of "Monkey") had a good look at him yesterday and told me that after seeing how ill he was last sunday, this was much better. She is convinced that he just needs time to get himself sorted. I had been told earlier that the heart duct was shut, Clara's not convinced as she said she could still hear a murmur, but it was quieter. (my jury's out on that one!) She said they have tested everything and theres nothing scary and not to keep blaming everything on the bleed either. wacko.gif She decided to start his feeds at 8pm last night at 2ml an hour and just keep him on that for a good few hours and take baby steps....
As ever, she seems to have made a good call. I just called the hospital and hes had a slightly better night and only one braddy this am. The same nurse has got him this am and she said he seems a bit better today. Feeds are still 2ml. No air or green stuff on draw back and tummy remains soft.
Cranial Ultra sound this am so we will perhaps know when the lumbar is to be done sometime today............................................. .
That was yesterday, this is today......
I don't know about a corner, but i think we have turned a slight bend today?!?!?!
He is tolerating his baby 2 ml per hour feeds and is only having braddys at feed time. His ventricle is the same size (next C.U. thursday)
My baby's beautiful big eyes were fully open and, for the first time in 11 very long heart wrenching days, was looking around and was managing to charm the pants out of his lady Dr!!
lump in my throat thinking of him looking up at his mommy Sending lots of love xxx
Nov 27th 2006 | 6:50 am
#119
On the Dark Side :-)
Joined: Apr 2004
Posts: 3,065
From: South Wales to New South Wales!
Re: Flynns update, its a rollercoaster!
Hevs that is such great news to wake up to!
Keep going Flynn lad - you're doing great!
Take care and best wishes as always.
Keep going Flynn lad - you're doing great!
Take care and best wishes as always.
Nov 27th 2006 | 7:06 am
#120
Lost in BE Cyberspace
Joined: Jun 2005
Posts: 9,909
From: Oz -> UK -> San Diego
Re: Flynns update, its a rollercoaster!
Don't know how I did it, but I completely missed this thread!!!
Thinking of you all!!
OD
xx
Thinking of you all!!
OD
xx
