Flynns update, its a rollercoaster!
Nov 24th 2006, 6:49 am
#91
A rather curious boy
Joined: Aug 2006
Location: Melbourne
Posts: 5,917
Re: Flynns update, its a rollercoaster!
As all the others have said, this is a tough, tough time but you will all get through it. Chin up and face the day. Best wishes to your family from mine.
Feel this.............................................. .................................................. .................................................. .................................................. .................................................. .................................................. .................................................. .................................................. .................................................. ...now that's a virtual hug!
Feel this.............................................. .................................................. .................................................. .................................................. .................................................. .................................................. .................................................. .................................................. .................................................. ...now that's a virtual hug!
Nov 24th 2006, 7:40 am
#92
visa holder
Joined: Jan 2006
Location: Thornlands, Bayside
Posts: 1,964
Re: Flynns update, its a rollercoaster!
Still sending positive thoughts and hugs. Hope you get to cuddle him soon.
Joex
Joex
Nov 26th 2006, 12:03 am
#93
High in the Dandenongs
Thread Starter
Joined: Apr 2003
Location: Listening to Puffing Billy
Posts: 9,183
Re: Flynns update, its a rollercoaster!
On friday i finally got my cuddle.........an i was looking down at him and it went horribly wrong.
Projectile bile green vomit aka excorcist style! :scared:
He went down hill very quickly after that and ended up on oxygen, looking very blue and the big boss being paged out of her training seminar. She raced up and barked out her orders (she is german and rather good at this) then we waited for a bowel xray. He gradually settled and it turns out hes full of wind, we mean FULL !! (it puts pressure on the heart and lungs, well the whole diaphragm really causing all sorts of breathing problems)
So when i asked her what they will do for him she said nothing it will dissapate itself. Then i said well what if it doesn't???
She said well it always does because she hadn't heard of an exploding baby. Yet.
So they stopped feeds AGAIN! then he settled and they decided not to give his last dose of heart medicine (to shut the duct) because that can cause feed intolerance. They decided to leave him on the two strong anti's "just in case". His ventricle is going up in size again so they will be doing another lumbar, its just a case of timing it so that they don't go in to soon and not drain enough CSF and not to late so he gets as sick as last weekend. Apart from that he was good yesturday so they started him a ml an hour, Then i said my goodbyes and he starts the sodding twitching again!
SO they stopped his feeds AGAIN. And apparently is a little better again and settled by 9.30 this am.
PAH!!!!!
I'm not cuddling him anymore now
Projectile bile green vomit aka excorcist style! :scared:
He went down hill very quickly after that and ended up on oxygen, looking very blue and the big boss being paged out of her training seminar. She raced up and barked out her orders (she is german and rather good at this) then we waited for a bowel xray. He gradually settled and it turns out hes full of wind, we mean FULL !! (it puts pressure on the heart and lungs, well the whole diaphragm really causing all sorts of breathing problems)
So when i asked her what they will do for him she said nothing it will dissapate itself. Then i said well what if it doesn't???
She said well it always does because she hadn't heard of an exploding baby. Yet.
So they stopped feeds AGAIN! then he settled and they decided not to give his last dose of heart medicine (to shut the duct) because that can cause feed intolerance. They decided to leave him on the two strong anti's "just in case". His ventricle is going up in size again so they will be doing another lumbar, its just a case of timing it so that they don't go in to soon and not drain enough CSF and not to late so he gets as sick as last weekend. Apart from that he was good yesturday so they started him a ml an hour, Then i said my goodbyes and he starts the sodding twitching again!
SO they stopped his feeds AGAIN. And apparently is a little better again and settled by 9.30 this am.
PAH!!!!!
I'm not cuddling him anymore now
Nov 26th 2006, 1:21 am
#94
Account Closed
Joined: Mar 2006
Posts: 10,158
Re: Flynns update, its a rollercoaster!
Originally Posted by hevs
On friday i finally got my cuddle.........an i was looking down at him and it went horribly wrong.
(((((Hugs)))))
Nov 26th 2006, 1:42 am
#95
BE Forum Addict
Joined: Jun 2003
Location: Mandurah WA
Posts: 1,395
Re: Flynns update, its a rollercoaster!
Hevs,
So difficult to find the right words when life is so tough for you all right now.
My thoughts and prayers are with you.
I know it must be terribly difficult to stay positive when you are on this rollercoaster, but try your best.
Whisky
So difficult to find the right words when life is so tough for you all right now.
My thoughts and prayers are with you.
I know it must be terribly difficult to stay positive when you are on this rollercoaster, but try your best.
Whisky
Nov 26th 2006, 6:29 am
#96
BE Forum Addict
Joined: Oct 2006
Location: Australind WA
Posts: 1,155
Re: Flynns update, its a rollercoaster!
Hang in there girl, my thoughts are with you
Sarah
Sarah
Nov 26th 2006, 6:53 am
#97
Lost in BE Cyberspace
Joined: Nov 2005
Location: at the bottom of a wine glass
Posts: 28,176
Re: Flynns update, its a rollercoaster!
Originally Posted by hevs
On friday i finally got my cuddle.........an i was looking down at him and it went horribly wrong.
Projectile bile green vomit aka excorcist style! :scared:
He went down hill very quickly after that and ended up on oxygen, looking very blue and the big boss being paged out of her training seminar. She raced up and barked out her orders (she is german and rather good at this) then we waited for a bowel xray. He gradually settled and it turns out hes full of wind, we mean FULL !! (it puts pressure on the heart and lungs, well the whole diaphragm really causing all sorts of breathing problems)
So when i asked her what they will do for him she said nothing it will dissapate itself. Then i said well what if it doesn't???
She said well it always does because she hadn't heard of an exploding baby. Yet.
So they stopped feeds AGAIN! then he settled and they decided not to give his last dose of heart medicine (to shut the duct) because that can cause feed intolerance. They decided to leave him on the two strong anti's "just in case". His ventricle is going up in size again so they will be doing another lumbar, its just a case of timing it so that they don't go in to soon and not drain enough CSF and not to late so he gets as sick as last weekend. Apart from that he was good yesturday so they started him a ml an hour, Then i said my goodbyes and he starts the sodding twitching again!
SO they stopped his feeds AGAIN. And apparently is a little better again and settled by 9.30 this am.
PAH!!!!!
I'm not cuddling him anymore now
Projectile bile green vomit aka excorcist style! :scared:
He went down hill very quickly after that and ended up on oxygen, looking very blue and the big boss being paged out of her training seminar. She raced up and barked out her orders (she is german and rather good at this) then we waited for a bowel xray. He gradually settled and it turns out hes full of wind, we mean FULL !! (it puts pressure on the heart and lungs, well the whole diaphragm really causing all sorts of breathing problems)
So when i asked her what they will do for him she said nothing it will dissapate itself. Then i said well what if it doesn't???
She said well it always does because she hadn't heard of an exploding baby. Yet.
So they stopped feeds AGAIN! then he settled and they decided not to give his last dose of heart medicine (to shut the duct) because that can cause feed intolerance. They decided to leave him on the two strong anti's "just in case". His ventricle is going up in size again so they will be doing another lumbar, its just a case of timing it so that they don't go in to soon and not drain enough CSF and not to late so he gets as sick as last weekend. Apart from that he was good yesturday so they started him a ml an hour, Then i said my goodbyes and he starts the sodding twitching again!
SO they stopped his feeds AGAIN. And apparently is a little better again and settled by 9.30 this am.
PAH!!!!!
I'm not cuddling him anymore now
I really wish I was closer, I'd be round like a shot to try and help you through this.
Nov 26th 2006, 8:27 am
#98
Joined: Sep 2005
Location: Mount Tamborine
Posts: 17,426
Re: Flynns update, its a rollercoaster!
Originally Posted by Wendy
Poor you I really wish I was closer, I'd be round like a shot to try and help you through this.
I really wish I was closer, I'd be round like a shot to try and help you through this.Still thinking of you all Hevs xxx
Nov 26th 2006, 9:57 am
#99
BE Forum Addict
Joined: Oct 2005
Location: Durham
Posts: 1,558
Re: Flynns update, its a rollercoaster!
(((((((((((((((Hugs)))))))))))))))))
to you all. Still thinking and praying for you.
Lynne x
to you all. Still thinking and praying for you.
Lynne x
Nov 26th 2006, 10:17 am
#100
Homeward bound
Joined: Nov 2006
Location: Costa Del Sol
Posts: 722
Re: Flynns update, its a rollercoaster!
Originally Posted by hevs
On friday i finally got my cuddle.........an i was looking down at him and it went horribly wrong.
Projectile bile green vomit aka excorcist style! :scared:
He went down hill very quickly after that and ended up on oxygen, looking very blue and the big boss being paged out of her training seminar. She raced up and barked out her orders (she is german and rather good at this) then we waited for a bowel xray. He gradually settled and it turns out hes full of wind, we mean FULL !! (it puts pressure on the heart and lungs, well the whole diaphragm really causing all sorts of breathing problems)
So when i asked her what they will do for him she said nothing it will dissapate itself. Then i said well what if it doesn't???
She said well it always does because she hadn't heard of an exploding baby. Yet.
So they stopped feeds AGAIN! then he settled and they decided not to give his last dose of heart medicine (to shut the duct) because that can cause feed intolerance. They decided to leave him on the two strong anti's "just in case". His ventricle is going up in size again so they will be doing another lumbar, its just a case of timing it so that they don't go in to soon and not drain enough CSF and not to late so he gets as sick as last weekend. Apart from that he was good yesturday so they started him a ml an hour, Then i said my goodbyes and he starts the sodding twitching again!
SO they stopped his feeds AGAIN. And apparently is a little better again and settled by 9.30 this am.
PAH!!!!!
I'm not cuddling him anymore now
Projectile bile green vomit aka excorcist style! :scared:
He went down hill very quickly after that and ended up on oxygen, looking very blue and the big boss being paged out of her training seminar. She raced up and barked out her orders (she is german and rather good at this) then we waited for a bowel xray. He gradually settled and it turns out hes full of wind, we mean FULL !! (it puts pressure on the heart and lungs, well the whole diaphragm really causing all sorts of breathing problems)
So when i asked her what they will do for him she said nothing it will dissapate itself. Then i said well what if it doesn't???
She said well it always does because she hadn't heard of an exploding baby. Yet.
So they stopped feeds AGAIN! then he settled and they decided not to give his last dose of heart medicine (to shut the duct) because that can cause feed intolerance. They decided to leave him on the two strong anti's "just in case". His ventricle is going up in size again so they will be doing another lumbar, its just a case of timing it so that they don't go in to soon and not drain enough CSF and not to late so he gets as sick as last weekend. Apart from that he was good yesturday so they started him a ml an hour, Then i said my goodbyes and he starts the sodding twitching again!
SO they stopped his feeds AGAIN. And apparently is a little better again and settled by 9.30 this am.
PAH!!!!!
I'm not cuddling him anymore now
Nic
Nov 26th 2006, 11:28 am
#101
BE Forum Addict
Joined: Nov 2003
Location: Lower Chittering, Perth
Posts: 4,646
Re: Flynns update, its a rollercoaster!
I dont often pray mate, but there will be a big one for you and yours tonight.
Take care xxxxxxxxxxxxxxxx
Take care xxxxxxxxxxxxxxxx
Nov 26th 2006, 1:38 pm
#102
Lost in BE Cyberspace
Joined: Apr 2006
Location: Ballarat
Posts: 7,005
Re: Flynns update, its a rollercoaster!
Been thinking of you all this weekend. Still praying that all goes well
Mandy
Mandy
Nov 27th 2006, 12:15 pm
#103
High in the Dandenongs
Thread Starter
Joined: Apr 2003
Location: Listening to Puffing Billy
Posts: 9,183
Re: Flynns update, its a rollercoaster!
Well yesterday was another eventful day in paradise 
Loads more braddys, stopped feeds again, more green stuff when they pulled back up the tube. Also soooo much mucus when they suctioned him, it was disgusting, sooner he learns to blow his nose and hoyk up the better!
Loads more blood tests, but still inconclusive. The main thought being immaturity of the respiratory system. Also, because of where the bleed was it could be that its breaking down/ causing swelling and causing the messages to the brain to be a bit scrambled.
Clara (my named guru Dr and christener of "Monkey") had a good look at him yesterday and told me that after seeing how ill he was last sunday, this was much better. She is convinced that he just needs time to get himself sorted. I had been told earlier that the heart duct was shut, Clara's not convinced as she said she could still hear a murmur, but it was quieter. (my jury's out on that one!) She said they have tested everything and theres nothing scary and not to keep blaming everything on the bleed either. wacko.gif She decided to start his feeds at 8pm last night at 2ml an hour and just keep him on that for a good few hours and take baby steps....
As ever, she seems to have made a good call. I just called the hospital and hes had a slightly better night and only one braddy this am. The same nurse has got him this am and she said he seems a bit better today. Feeds are still 2ml. No air or green stuff on draw back and tummy remains soft.
Cranial Ultra sound this am so we will perhaps know when the lumbar is to be done sometime today............................................. .
That was yesterday, this is today......
I don't know about a corner, but i think we have turned a slight bend today?!?!?!
He is tolerating his baby 2 ml per hour feeds and is only having braddys at feed time. His ventricle is the same size (next C.U. thursday)
My baby's beautiful big eyes were fully open and, for the first time in 11 very long heart wrenching days, was looking around and was managing to charm the pants out of his lady Dr!!
Loads more braddys, stopped feeds again, more green stuff when they pulled back up the tube. Also soooo much mucus when they suctioned him, it was disgusting, sooner he learns to blow his nose and hoyk up the better!
Loads more blood tests, but still inconclusive. The main thought being immaturity of the respiratory system. Also, because of where the bleed was it could be that its breaking down/ causing swelling and causing the messages to the brain to be a bit scrambled.
Clara (my named guru Dr and christener of "Monkey") had a good look at him yesterday and told me that after seeing how ill he was last sunday, this was much better. She is convinced that he just needs time to get himself sorted. I had been told earlier that the heart duct was shut, Clara's not convinced as she said she could still hear a murmur, but it was quieter. (my jury's out on that one!) She said they have tested everything and theres nothing scary and not to keep blaming everything on the bleed either. wacko.gif She decided to start his feeds at 8pm last night at 2ml an hour and just keep him on that for a good few hours and take baby steps....
As ever, she seems to have made a good call. I just called the hospital and hes had a slightly better night and only one braddy this am. The same nurse has got him this am and she said he seems a bit better today. Feeds are still 2ml. No air or green stuff on draw back and tummy remains soft.
Cranial Ultra sound this am so we will perhaps know when the lumbar is to be done sometime today............................................. .
That was yesterday, this is today......
I don't know about a corner, but i think we have turned a slight bend today?!?!?!
He is tolerating his baby 2 ml per hour feeds and is only having braddys at feed time. His ventricle is the same size (next C.U. thursday)
My baby's beautiful big eyes were fully open and, for the first time in 11 very long heart wrenching days, was looking around and was managing to charm the pants out of his lady Dr!!
Nov 27th 2006, 12:21 pm
#104
BE Forum Addict
Joined: Oct 2003
Location: Nappyland
Posts: 2,886
Re: Flynns update, its a rollercoaster!
Originally Posted by hevs
My baby's beautiful big eyes were fully open and, for the first time in 11 very long heart wrenching days, was looking around and was managing to charm the pants out of his lady Dr!!
Nov 27th 2006, 12:32 pm
#105
Homeward bound
Joined: Nov 2006
Location: Costa Del Sol
Posts: 722
Re: Flynns update, its a rollercoaster!
Finally cracked a smile whilst reading your update, lets hope things keep improving.
Nic
Nic