Flynns update, its a rollercoaster!
Nov 27th 2006, 8:20 pm
#121
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Joined: Oct 2005
Location: Durham
Posts: 1,558
Re: Flynns update, its a rollercoaster!
Brilliant news to hear Hevs. Hes a little fighter.
Lynne x
Lynne x
Nov 27th 2006, 9:00 pm
#122
Account Closed
Joined: Mar 2006
Posts: 10,158
Re: Flynns update, its a rollercoaster!
Great news, hevs... baby steps seems to be the way to go.
Go Flynn!
Go Flynn!
Nov 28th 2006, 8:38 am
#123
aka bunja
Joined: May 2005
Location: Butler, WA
Posts: 1,697
Re: Flynns update, its a rollercoaster!
Brilliant news, Hevs. Sounds like he's a real trooper.
Lets hope for more bends.
Janine
Lets hope for more bends.
Janine
Nov 28th 2006, 9:39 am
#124
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Location: Gippsland, Victoria since April '05 and loving it! (ex-Belgium)
Posts: 70
Re: Flynns update, its a rollercoaster!
Great news, this made me smile 
Keep it up Flynn!! Every day a little bit stronger...
Els xx
Keep it up Flynn!! Every day a little bit stronger...Els xx
Nov 30th 2006, 8:49 pm
#125
Joined: Jul 2004
Posts: 12,063
Re: Flynns update, its a rollercoaster!
How are things Hevs?
Dec 1st 2006, 1:26 pm
#126
Joined: Sep 2005
Location: Mount Tamborine
Posts: 17,426
Re: Flynns update, its a rollercoaster!
Originally Posted by possoms
How are things Hevs?
Dec 1st 2006, 2:56 pm
#127
Home and Happy
Joined: Dec 2002
Location: Keep true friends and puppets close, trust no-one else...
Posts: 93,825
Re: Flynns update, its a rollercoaster!
Originally Posted by Clippies
Anyone heard anything?
Dec 1st 2006, 3:04 pm
#128
Home and Happy
Joined: Dec 2002
Location: Keep true friends and puppets close, trust no-one else...
Posts: 93,825
Re: Flynns update, its a rollercoaster!
Latest report guys is "an up and down couple of days" mainly to do with feeding - which doesn't mean a lot to me as I have a stuffed chipmunk not a baby 
but at least Flynn is hanging in there for all he's worth.
That report is now 24 hours old, so lets just keep praying, hoping and everything else.
but at least Flynn is hanging in there for all he's worth. That report is now 24 hours old, so lets just keep praying, hoping and everything else.
Dec 1st 2006, 3:27 pm
#129
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Joined: Oct 2006
Location: Australind WA
Posts: 1,155
Re: Flynns update, its a rollercoaster!
Originally Posted by Pollyana
Latest report guys is "an up and down couple of days" mainly to do with feeding - which doesn't mean a lot to me as I have a stuffed chipmunk not a baby but at least Flynn is hanging in there for all he's worth.
That report is now 24 hours old, so lets just keep praying, hoping and everything else.
but at least Flynn is hanging in there for all he's worth. That report is now 24 hours old, so lets just keep praying, hoping and everything else.
sarah
Dec 1st 2006, 4:26 pm
#130
Homeward bound
Joined: Nov 2006
Location: Costa Del Sol
Posts: 722
Re: Flynns update, its a rollercoaster!
Originally Posted by Pollyana
Latest report guys is "an up and down couple of days" mainly to do with feeding - which doesn't mean a lot to me as I have a stuffed chipmunk not a baby but at least Flynn is hanging in there for all he's worth.
That report is now 24 hours old, so lets just keep praying, hoping and everything else.
but at least Flynn is hanging in there for all he's worth. That report is now 24 hours old, so lets just keep praying, hoping and everything else.
have been wondering if everuthing was alright
Nic
Dec 1st 2006, 5:50 pm
#131
aka DORIS
Joined: Sep 2006
Location: qld
Posts: 1,584
Re: Flynns update, its a rollercoaster!
All the words have been said so I cant add anything new except special wishes and special prayers for you all.
Kaye
Kaye
Dec 1st 2006, 6:26 pm
#132
Forum Regular
Joined: Jul 2006
Location: Halifax, West Yorkshire
Posts: 110
Re: Flynns update, its a rollercoaster!
Originally Posted by Pollyana
Latest report guys is "an up and down couple of days" mainly to do with feeding - which doesn't mean a lot to me as I have a stuffed chipmunk not a baby but at least Flynn is hanging in there for all he's worth.
That report is now 24 hours old, so lets just keep praying, hoping and everything else.
but at least Flynn is hanging in there for all he's worth. That report is now 24 hours old, so lets just keep praying, hoping and everything else.
Wow
Just read all this thread. What a fighter!! Flynn (Monkey) you're a trooper!!
Prayers go out to your mum and dad though, hang on in there!!
Dec 1st 2006, 10:45 pm
#133
High in the Dandenongs
Thread Starter
Joined: Apr 2003
Location: Listening to Puffing Billy
Posts: 9,183
Re: Flynns update, its a rollercoaster!
The last few days has been down up down up. As Polly said a lot of it was feed intolerance, which doesn't sound much but in a tiny baby can be very bad. It makes their gut lining very thin and in some cases can leak bacteria into other parts of the body and cause necroses, very bad news!!!
Anyway after much deliberation, tests x rays, food thickening, stop starting he was left on 2 mls per hour for a while.
In the mean time cranial ultra sound day was looming and at the back of my mind (and most other peoples) was the fact that all this discomfort and braddys could be down to pressure on the brain caused by the sodding ventricle growing larger and needing some more intervention.
BUT!!!
The ventricle is SMALLER!!!!!!! This is looking like no further intervention for a long while if any and pretty much no visits from the Neuro surgery team YAY
Secondly he lasted 12 hours without his C Pap (constant positive air pressure, the things up his nose to help his lungs stay partially inflated) Then he started to tire so they put him back on. This is massive progress, BUT (please don't tell me i'm being pessimistic, just keepin it real
) he is doing this with the aid of drugs (lung stimulant) and monitors, he is far from going solo yet. HOWEVER its still a massive achievement.
He also had a big poo!!!!
(again with ermmm help 
) but he did it and his tummy looked much less Garfield like once he'd done it.
Clara broke the news of the ventricle yesterday and she got a huge shout and a big hug from me whistle.gif and she tells me that Flynn is her little hero and shes so proud of him too.
Anyway he's back on Cpap this am, very very tired apparently, but they haven't had to give him oxygen, hes still in air and they will leave him alone for a few days now.
He is still only on 3 mls of feed per hour, which is now being thickened to help with his reflux, but he is tolerating it well. They will probably keep him on that for today so they don't sress him after all that exertion breathing on his own.
I do have some photos of him with no tubes on his face, but can't find them at the mo (the PC's eaten them ) But when Matt's around I'll post them.
Flynn is one whole month today
Check this out from a couple of days ago...
Anyway after much deliberation, tests x rays, food thickening, stop starting he was left on 2 mls per hour for a while.
In the mean time cranial ultra sound day was looming and at the back of my mind (and most other peoples) was the fact that all this discomfort and braddys could be down to pressure on the brain caused by the sodding ventricle growing larger and needing some more intervention.
BUT!!!
The ventricle is SMALLER!!!!!!! This is looking like no further intervention for a long while if any and pretty much no visits from the Neuro surgery team YAY
Secondly he lasted 12 hours without his C Pap (constant positive air pressure, the things up his nose to help his lungs stay partially inflated) Then he started to tire so they put him back on. This is massive progress, BUT (please don't tell me i'm being pessimistic, just keepin it real
) he is doing this with the aid of drugs (lung stimulant) and monitors, he is far from going solo yet. HOWEVER its still a massive achievement.He also had a big poo!!!!
(again with ermmm help ) but he did it and his tummy looked much less Garfield like once he'd done it.Clara broke the news of the ventricle yesterday and she got a huge shout and a big hug from me whistle.gif and she tells me that Flynn is her little hero and shes so proud of him too.
Anyway he's back on Cpap this am, very very tired apparently, but they haven't had to give him oxygen, hes still in air and they will leave him alone for a few days now.
He is still only on 3 mls of feed per hour, which is now being thickened to help with his reflux, but he is tolerating it well. They will probably keep him on that for today so they don't sress him after all that exertion breathing on his own.
I do have some photos of him with no tubes on his face, but can't find them at the mo (the PC's eaten them
) But when Matt's around I'll post them.Flynn is one whole month today
Check this out from a couple of days ago...
Dec 1st 2006, 10:55 pm
#134
Account Closed
Joined: Mar 2006
Posts: 10,158
Re: Flynns update, its a rollercoaster!
Hevs, that's lovely news about his ventricle and poohing... And coming off the C pap for a while too... That's massive progress!
Well done to him and to everyone caring for him. Fab job!
And Happy Birthday to Flynn for a whole month! Every day is a plus.
x
And coming off the C pap for a while too... That's massive progress!Well done to him and to everyone caring for him. Fab job!
And Happy Birthday to Flynn for a whole month! Every day is a plus.
x
Dec 1st 2006, 11:15 pm
#135
Homeward bound
Joined: Nov 2006
Location: Costa Del Sol
Posts: 722
Re: Flynns update, its a rollercoaster!
Hi Hevs,
Bit of a relief to get your post, a lot of people were worried. Flynn is absolutely BEAUTIFUL You must be so proud of him. your post made me jump up and down, - OH thainks i've lost the plot. Soooooo pleased for you all, keep it up.
Nic
Bit of a relief to get your post, a lot of people were worried. Flynn is absolutely BEAUTIFUL
You must be so proud of him. your post made me jump up and down, - OH thainks i've lost the plot. Soooooo pleased for you all, keep it up.Nic