The Thyroid Thread
#61










Joined: Oct 2007
Posts: 9,668

well, I phoned at 8.30 and got in to see the doctor this morning. What a waste of time 
I felt like telling him this was his last chance, maybe it would have put a rocket up his jacksy
Anyway, he said that the collection I have on my leg just lower than my knee is fatty tissue ..... and people with thyroid problems do get fluid retention.
Well, sorry mate but you are SACKED!!
My legs are fine except this bulge that either collects just below the knee or it goes to my ankles. FFS, if I take the water tablets they go. I told him this too.
That's it, I'm not looking back now - but need to find another doctor
Thanks to everyone again for the advice.
J x

I felt like telling him this was his last chance, maybe it would have put a rocket up his jacksy
Anyway, he said that the collection I have on my leg just lower than my knee is fatty tissue ..... and people with thyroid problems do get fluid retention.
Well, sorry mate but you are SACKED!!
My legs are fine except this bulge that either collects just below the knee or it goes to my ankles. FFS, if I take the water tablets they go. I told him this too.
That's it, I'm not looking back now - but need to find another doctor

Thanks to everyone again for the advice.
J x

You gotta laugh.
If you want to find a good endo, then ask for doctor recommendations on Thyroid madness board or check out the top docs list.
http://www.stopthethyroidmadness.com...fde47e8fe8e68e
#62










Joined: Oct 2007
Posts: 9,668

Yes i did .I was hoping you'd come on tiddlyPom,whats your thoughts on this.
Been on NTH for sometime now,was on 6 grains but by default ended up on 3 grains with no ill effects,also on DHEA,progesterone cream,etc.Recently massive hairloss,tingling in hands ,feet returned along with tearfulness and generally feeling shite again.I also lost 13 kilos around the time i went onto 3 grains.Have increased dose to 6 grains again but seem to be no better.Have huge watery retention and can lose 3/4 kilos in the first week of cutting out all the crap even when on meds.Cortisol was not too bad and i was a little low on b12 when tested.Cant get to see dr until middle of next month hence the request for your input.
Any ideas would be appreciated
thx donna
Been on NTH for sometime now,was on 6 grains but by default ended up on 3 grains with no ill effects,also on DHEA,progesterone cream,etc.Recently massive hairloss,tingling in hands ,feet returned along with tearfulness and generally feeling shite again.I also lost 13 kilos around the time i went onto 3 grains.Have increased dose to 6 grains again but seem to be no better.Have huge watery retention and can lose 3/4 kilos in the first week of cutting out all the crap even when on meds.Cortisol was not too bad and i was a little low on b12 when tested.Cant get to see dr until middle of next month hence the request for your input.
Any ideas would be appreciated
thx donna
What was your original diagnosis? Just a slow thyroid?
Is this a GP who's treating you or an endo?
If it's your GP I would recommend you find a top endo and go see as soon as pos.
Where are you situated?
Have you been tested properly for Graves at all? Has anyone checked your antibodies? You need to rule these things out. Whilst you can lose weight with a slow thyroid, it's not common, esp at the rate you're losing.
You could also have very sluggish adrenals ... they need to be tested because sometimes you can present with hyper symptoms on NT if your adrenals are out of whack.
x
#63
BE Forum Addict






Joined: Apr 2002
Posts: 1,020
From: brisbane











Donna, this sounds annoying for you?
What was your original diagnosis? Just a slow thyroid?
Is this a GP who's treating you or an endo?
If it's your GP I would recommend you find a top endo and go see as soon as pos.
Where are you situated?
Have you been tested properly for Graves at all? Has anyone checked your antibodies? You need to rule these things out. Whilst you can lose weight with a slow thyroid, it's not common, esp at the rate you're losing.
You could also have very sluggish adrenals ... they need to be tested because sometimes you can present with hyper symptoms on NT if your adrenals are out of whack.
x
What was your original diagnosis? Just a slow thyroid?
Is this a GP who's treating you or an endo?
If it's your GP I would recommend you find a top endo and go see as soon as pos.
Where are you situated?
Have you been tested properly for Graves at all? Has anyone checked your antibodies? You need to rule these things out. Whilst you can lose weight with a slow thyroid, it's not common, esp at the rate you're losing.
You could also have very sluggish adrenals ... they need to be tested because sometimes you can present with hyper symptoms on NT if your adrenals are out of whack.
x
Thx
Donna
#64










Joined: Oct 2007
Posts: 9,668

You lot are fantastic
Whether I'm one of the ones who gets sorted easily or I join the 'needs more effort to get it sorted' gang, it's good to know you are here 
Thanks for your responses (and PMs). I'm off to see both Mum and sister this afternoon, think I'll quiz them too. Difficult to tell how badly Mum is affected as she's got quite a few problems. Sis seems to function normally but her weight fluctuates hugely.
One question. When I eat a main meal, I feel uncomfortably full really quickly, it feels as if the food gets stuck just below my ribs rather than in my tummy. Anyone else get that? It's not nice, but at least it stops me eating as much as I would otherwise do (I do tend to comfort eat when I'm fed up)....
Whether I'm one of the ones who gets sorted easily or I join the 'needs more effort to get it sorted' gang, it's good to know you are here 
Thanks for your responses (and PMs). I'm off to see both Mum and sister this afternoon, think I'll quiz them too. Difficult to tell how badly Mum is affected as she's got quite a few problems. Sis seems to function normally but her weight fluctuates hugely.
One question. When I eat a main meal, I feel uncomfortably full really quickly, it feels as if the food gets stuck just below my ribs rather than in my tummy. Anyone else get that? It's not nice, but at least it stops me eating as much as I would otherwise do (I do tend to comfort eat when I'm fed up)....
Sorry, only just seen this. Digestive problems are common with thyroid problems. Many try to cut out the main irritants one by one for a few weeks... wheat is the most common one, then dairy. Wheat antibodies can hang around for months on end if you're allergic to it - I've read you need to cut something out for 6 weeks to really make sure you're not allergic...
Digestion can be affected anyway, as it slows down when your thyroid is dodgy... this will prob improve once your medication is optimised.

Just try to eat smaller more regular meals if you can for now. Split into 6 small meals instead of three large ones.
I don't know if anyone here uses coconut oil as a metabolism booster?
If you're having thyroid metabolic issues, eating 2-3 tablespoons of coconut oil a day will boost your metabolism.
Some people put it in their coffee, you can cook with it, others make yummy things out of it (it's hard once in the fridge) and eat it that way.
Don't read the stupid people who say coconut oil is high in saturated fats. It's composition actually makes it a healthier oil that olive.
http://www.coconut-info.com/
That might help slow digestion. Certainly once I eat it, I 'super heat' for a few mins in my fingers and other extremities.
Very useful for you guys who are suffering with hypo symptoms.
#65










Joined: Oct 2007
Posts: 9,668

Am seeing a dr who is also a naturapath and has a thyroid problem herself,also she is one of the very ,very few that will prescibe NTH and i am in Brisbane Bayside area.Have got Hashimotos(antibodies @ 3500)am having these retested next week and am not sure if this is another attack.Have had adrenals tested and although not brilliant mid morning they are not too bad(Someone mentioned treating these yourself,how do you do that?)Can loss weightbut need to be soooo strict with carbs and its only the first week i lose that amount.Also have lesions on my liver,again being rescanned next week and nodules on my thyroid,but no goiter thank goodness.Its a bit of an enigma isnt it.
Thx
Donna
Thx
Donna
It sounds like you've been ill for some time with this if you've got nodules and lesions.
Then if your doc is this good I'd be looking at adrenals. Them being 'not too bad' isn't good enough.
There's an excellent site here to treat your adrenals:
http://www.drlam.com/A3R_brief_in_do...al_fatigue.cfm
Your weight loss could be a water weight issue. IF you cut out carbs, then you will drop water ... but if the weight loss isn't ongoing, then it's an indicator you're not losing fat.
#66
BE Forum Addict






Joined: Apr 2002
Posts: 1,020
From: brisbane











Wow... Your antibodies are huge. Your treatment should be bringing them down. I would ask about Graves.... make sure it's been ruled out.
It sounds like you've been ill for some time with this if you've got nodules and lesions.
Then if your doc is this good I'd be looking at adrenals. Them being 'not too bad' isn't good enough.
There's an excellent site here to treat your adrenals:
http://www.drlam.com/A3R_brief_in_do...al_fatigue.cfm
Your weight loss could be a water weight issue. IF you cut out carbs, then you will drop water ... but if the weight loss isn't ongoing, then it's an indicator you're not losing fat.
It sounds like you've been ill for some time with this if you've got nodules and lesions.
Then if your doc is this good I'd be looking at adrenals. Them being 'not too bad' isn't good enough.
There's an excellent site here to treat your adrenals:
http://www.drlam.com/A3R_brief_in_do...al_fatigue.cfm
Your weight loss could be a water weight issue. IF you cut out carbs, then you will drop water ... but if the weight loss isn't ongoing, then it's an indicator you're not losing fat.
For those that are researching stuff the stop the thyroid madness site is brill but they are no longer open on the forum although you can look at the archived stuff.The new site is called realthyroidhelp,many of the old people have moved over to that site.
thx tiddlypom
donna
#67










Joined: Oct 2007
Posts: 9,668

Why thankyou, i will look at the site re adrenals.
For those that are researching stuff the stop the thyroid madness site is brill but they are no longer open on the forum although you can look at the archived stuff.The new site is called realthyroidhelp,many of the old people have moved over to that site.
thx tiddlypom
donna
For those that are researching stuff the stop the thyroid madness site is brill but they are no longer open on the forum although you can look at the archived stuff.The new site is called realthyroidhelp,many of the old people have moved over to that site.
thx tiddlypom
donna
Real thyroid help is here:
http://www.realthyroidhelp.com/
#68
Fatty tissue? 
I know!! He said if it was fluid it would make a mark when he pushed on it - which it did
You gotta laugh.
If the look I gave him could kill.....
If you want to find a good endo, then ask for doctor recommendations on Thyroid madness board or check out the top docs list.
Your link is working but the doctor list is not
http://www.stopthethyroidmadness.com...fde47e8fe8e68e

I know!! He said if it was fluid it would make a mark when he pushed on it - which it did

You gotta laugh.
If the look I gave him could kill.....

If you want to find a good endo, then ask for doctor recommendations on Thyroid madness board or check out the top docs list.
Your link is working but the doctor list is not

http://www.stopthethyroidmadness.com...fde47e8fe8e68e
J x
#70
Auntie Fa










Joined: Nov 2006
Posts: 7,344
From: Seattle











Just quickly scanned the new threads and in too much of a rush to post properly now but a couple of things:
1. I have really odd-shaped knees - I thought it was fat from when I put on all the weight but my osteopath says it is a synovial fluid sack, it looks worse when my joints are inflamed but never really goes away.
2. Coconut oil is good - from what I've read it's much better to cook with than olive oil, stands up better to high temperatures. Downside is, it's a very strong taste that some don't like. Great for steam-frying though.
1. I have really odd-shaped knees - I thought it was fat from when I put on all the weight but my osteopath says it is a synovial fluid sack, it looks worse when my joints are inflamed but never really goes away.
2. Coconut oil is good - from what I've read it's much better to cook with than olive oil, stands up better to high temperatures. Downside is, it's a very strong taste that some don't like. Great for steam-frying though.
#71










Joined: Oct 2007
Posts: 9,668

Just quickly scanned the new threads and in too much of a rush to post properly now but a couple of things:
1. I have really odd-shaped knees - I thought it was fat from when I put on all the weight but my osteopath says it is a synovial fluid sack, it looks worse when my joints are inflamed but never really goes away.
2. Coconut oil is good - from what I've read it's much better to cook with than olive oil, stands up better to high temperatures. Downside is, it's a very strong taste that some don't like. Great for steam-frying though.
1. I have really odd-shaped knees - I thought it was fat from when I put on all the weight but my osteopath says it is a synovial fluid sack, it looks worse when my joints are inflamed but never really goes away.
2. Coconut oil is good - from what I've read it's much better to cook with than olive oil, stands up better to high temperatures. Downside is, it's a very strong taste that some don't like. Great for steam-frying though.
You can also use it as a body moisturiser. It's superior to any lotion and has such great benefits for your skin.
#72
Sometimes though too much information can cause more problems than solve others. If you don't have faith in your doctor you find another. If you have a doctor who knows what they're talking about - regardless of illness you trust them. If and when you start feeling slightly worse again, then you should investigate further. If someone is diagnosed today and immediately reads everything going they are going to freak themselves out and possibly cause more problems.
IMO medical education should be a slow long term thing, when things are going well there is little need to look for problems.
Obviously if you have no faith in your doctor and you're not getting better then yes get more info and another doctor.
IMO medical education should be a slow long term thing, when things are going well there is little need to look for problems.
Obviously if you have no faith in your doctor and you're not getting better then yes get more info and another doctor.
The problem on here is that people all air their probs that they're having with their thryoids (myself included over previous months) and they freak out the newly diagnosed person. I say it again........underactive thyroid is VERY common and VERY treatable and I still believe that you should only spend time looking into other possible treatments or causes if the treatment you are currently receiving isnt working and you dont have confidence in your doctor.
#73










Joined: Oct 2007
Posts: 9,668

Thats spot on Pen.....if you're being treated.......and you feel well........why would you spend your days searching for reasons why you 'did' feel the way you did.......and what 'could' happen if you werent treated correctly.
The problem on here is that people all air their probs that they're having with their thryoids (myself included over previous months) and they freak out the newly diagnosed person. I say it again........underactive thyroid is VERY common and VERY treatable and I still believe that you should only spend time looking into other possible treatments or causes if the treatment you are currently receiving isnt working and you dont have confidence in your doctor.
The problem on here is that people all air their probs that they're having with their thryoids (myself included over previous months) and they freak out the newly diagnosed person. I say it again........underactive thyroid is VERY common and VERY treatable and I still believe that you should only spend time looking into other possible treatments or causes if the treatment you are currently receiving isnt working and you dont have confidence in your doctor.
People accept this or they don't. I personally didn't and did my research so that I could end up getting a medication that wasn't mainstream and which isn't now 'approved' of by NHS docs etc.
It's amazing the little niggly things people put up with and end up just saying 'this is normal now, because I have a dodgy thyroid'.
I don't think for one moment anyone here is freaked out in any way shape or form from the information which has been presented. Much of it is things that a good thyroid doc will tell you anyway, except that many don't have a good thyroid doc, as shown.
Of course, you are totally right when you say it's common and very treatable. I don't see anywhere on here which says it isn't common or treatable. What I do believe people need is the bigger picture so that they can have choice and control about their situation, which for many doesn't exist.
As you know, I was on T4 only medication until it stopped working and my health started to decline again for a short spell last year. It was at that point I was able to use my T3 knowlege to my advantage and search for a doctor who would prescribe it.
I got that help before I got too ill.
As they say, knowlege is power.
If you're happy with your treatment, then great for you.
If anyone's freaked out, do say so.
I get freaked out by people's blind acceptance of what the doctors tell them. But hey, that's just me. I like being informed about what's happening with my body because for me, that's why I'm now sitting here 100% well.
If I'd listened to my doc in the UK, I'd probably be dead by now.
#74
I think what you're missing Mrs J, is that quite often, people feel 80% ok or perhaps even 90% ok, and when they start to ask if they could feel 100% ok, they get knocked back by doctors who tell them that they won't ever be feeling 100% again because they have this condition they need to manage for the rest of their life.
People accept this or they don't. I personally didn't and did my research so that I could end up getting a medication that wasn't mainstream and which isn't now 'approved' of by NHS docs etc.
It's amazing the little niggly things people put up with and end up just saying 'this is normal now, because I have a dodgy thyroid'.
I don't think for one moment anyone here is freaked out in any way shape or form from the information which has been presented. Much of it is things that a good thyroid doc will tell you anyway, except that many don't have a good thyroid doc, as shown.
Of course, you are totally right when you say it's common and very treatable. I don't see anywhere on here which says it isn't common or treatable. What I do believe people need is the bigger picture so that they can have choice and control about their situation, which for many doesn't exist.
As you know, I was on T4 only medication until it stopped working and my health started to decline again for a short spell last year. It was at that point I was able to use my T3 knowlege to my advantage and search for a doctor who would prescribe it.
I got that help before I got too ill.
As they say, knowlege is power.
If you're happy with your treatment, then great for you.
If anyone's freaked out, do say so.
I get freaked out by people's blind acceptance of what the doctors tell them. But hey, that's just me. I like being informed about what's happening with my body because for me, that's why I'm now sitting here 100% well.
If I'd listened to my doc in the UK, I'd probably be dead by now.
People accept this or they don't. I personally didn't and did my research so that I could end up getting a medication that wasn't mainstream and which isn't now 'approved' of by NHS docs etc.
It's amazing the little niggly things people put up with and end up just saying 'this is normal now, because I have a dodgy thyroid'.
I don't think for one moment anyone here is freaked out in any way shape or form from the information which has been presented. Much of it is things that a good thyroid doc will tell you anyway, except that many don't have a good thyroid doc, as shown.
Of course, you are totally right when you say it's common and very treatable. I don't see anywhere on here which says it isn't common or treatable. What I do believe people need is the bigger picture so that they can have choice and control about their situation, which for many doesn't exist.
As you know, I was on T4 only medication until it stopped working and my health started to decline again for a short spell last year. It was at that point I was able to use my T3 knowlege to my advantage and search for a doctor who would prescribe it.
I got that help before I got too ill.
As they say, knowlege is power.
If you're happy with your treatment, then great for you.
If anyone's freaked out, do say so.
I get freaked out by people's blind acceptance of what the doctors tell them. But hey, that's just me. I like being informed about what's happening with my body because for me, that's why I'm now sitting here 100% well.
If I'd listened to my doc in the UK, I'd probably be dead by now.


Also in my case, I thought I felt well until I actually started getting the right treatment - until then I didn't realise that I actually was just getting by. I think I forgot what it meant to be 100% most of the time. By 2 or 3 pm I would need to have a lie down, now I only need that occasionally when my iron levels are low (but that's a totally different and unrelated condition that will hopefully be sorted out this week
)
#75










Joined: Oct 2007
Posts: 9,668

Agree with all that. 
Also in my case, I thought I felt well until I actually started getting the right treatment - until then I didn't realise that I actually was just getting by. I think I forgot what it meant to be 100% most of the time. By 2 or 3 pm I would need to have a lie down, now I only need that occasionally when my iron levels are low (but that's a totally different and unrelated condition that will hopefully be sorted out this week
)

Also in my case, I thought I felt well until I actually started getting the right treatment - until then I didn't realise that I actually was just getting by. I think I forgot what it meant to be 100% most of the time. By 2 or 3 pm I would need to have a lie down, now I only need that occasionally when my iron levels are low (but that's a totally different and unrelated condition that will hopefully be sorted out this week
)Yes, agree that after feeling ill for years I had totally forgotten what it felt like to be full of energy and 'vim' again (does anyone still say that?)
)I've rediscovered that again... it feels so good. Never take that for granted again.



