Some difficult news from Oakvillian
Jan 22nd 2017, 11:58 am
#241
Yo
Joined: Nov 2012
Location: UK
Posts: 24,474
Re: Some difficult news from Oakvillian
Great progress Rosie 
(P.S. Good idea to change/renew thread title)
(P.S. Good idea to change/renew thread title)
Jan 22nd 2017, 12:29 pm
#242
SUPER MODERATOR
Joined: Dec 2005
Posts: 88,022
Re: Some difficult news from Oakvillian
Maybe when Rosie leaves hospital we could have a new thread...linked to this one.
Jan 22nd 2017, 7:05 pm
#243
Concierge
Thread Starter
Joined: Jun 2011
Location: Oakville, ON, CA
Posts: 8,320
Jan 23rd 2017, 12:49 pm
#245
Professional Cat herder
Joined: Apr 2007
Location: TORONTO- yay!!!
Posts: 5,707
Re: Some difficult news from Oakvillian
it never ceases to amaze me how resilient children are. Rosie has an amazing attitude and an amazing support structure.
She'll be just fine and it warms my heart to realize that
She'll be just fine and it warms my heart to realize that
Jan 24th 2017, 3:18 pm
#246
BE Enthusiast
Joined: Jun 2008
Location: Wellington, Nova Scotia
Posts: 752
Re: Some difficult news from Oakvillian
Only just seen this. So sorry to hear that Rosie and her family have had to endure so much trauma and worry,but very happy to hear that she is making such good progress. Sending positive thoughts for the best outcome possible for Rosie and her family.
Jan 26th 2017, 1:46 pm
#247
Concierge
Thread Starter
Joined: Jun 2011
Location: Oakville, ON, CA
Posts: 8,320
Re: Some difficult news from Oakvillian
An update from Rosie's Facebook page, found here: https://www.facebook.com/TheRosieSpa...type=3&theater (Includes a picture of Rosie's shopping trip!)
Excitement and frustration
It’s been another busy couple of weeks for Rosie. Since the removal of her tracheostomy, the new-found freedom to move around the hospital without a medical retinue has been a huge boost to morale. We’ve discovered all sorts of interesting parts of the building – including a rather lovely glass atrium with trees and waterfalls, that’s actually in the building next-door but connected by a footbridge to the main hospital.
Most excitingly, though, Rosie was given permission to leave the bounds of the hospital altogether, taking a wheelchair-accessible taxi to a local shopping mall. Retail therapy, it seems, is a genuine medically-approved procedure! Seriously, though, the important aspect of the trip was to get Rosie comfortable with being away from immediate medical support, and to allow her to experience being in a public place in her wheelchair. We were able to buy some wheelchair-friendly clothes, too, which was an added bonus.
This trip was to have been the precursor to a visit home on Wednesday evening, but alas, three-quarters of the household succumbed to a tummy bug on Tuesday night and that plan was abandoned as it would be counterproductive for Rosie to come home to a house full of sick people. So we’re regrouping for early next week instead.
In the meantime, progress on Rosie’s remaining medical issues is slow but steady. The nutritional/gastrointestinal teams have reassessed Rosie’s digestive system, and adjusted her nutritional intake a bit: she was not gaining weight adequately to alleviate some of the physical symptoms in her abdomen which make it difficult for her to process food taken by mouth, so is still reliant on a feeding tube for her calories. The other significant news surgically is that the repair to her right kidney is scheduled for this coming Friday, 27 January, at which point it’s hoped that Rosie will lose the nephrostomy drain in her right side, and will be able to begin the process of managing her bladder output more actively. In due course this will become a part of her rehabilitation therapy.
We still don’t have a firm date for the move to Bloorview – the process is well under way, with introductory visits for Kate and Doug scheduled this week, and briefings and phone calls between medical teams taking place regularly. After the kidney surgery we should have a clearer picture of when Rosie will be ready to make that transition.
Excitement and frustration
It’s been another busy couple of weeks for Rosie. Since the removal of her tracheostomy, the new-found freedom to move around the hospital without a medical retinue has been a huge boost to morale. We’ve discovered all sorts of interesting parts of the building – including a rather lovely glass atrium with trees and waterfalls, that’s actually in the building next-door but connected by a footbridge to the main hospital.
Most excitingly, though, Rosie was given permission to leave the bounds of the hospital altogether, taking a wheelchair-accessible taxi to a local shopping mall. Retail therapy, it seems, is a genuine medically-approved procedure! Seriously, though, the important aspect of the trip was to get Rosie comfortable with being away from immediate medical support, and to allow her to experience being in a public place in her wheelchair. We were able to buy some wheelchair-friendly clothes, too, which was an added bonus.
This trip was to have been the precursor to a visit home on Wednesday evening, but alas, three-quarters of the household succumbed to a tummy bug on Tuesday night and that plan was abandoned as it would be counterproductive for Rosie to come home to a house full of sick people. So we’re regrouping for early next week instead.
In the meantime, progress on Rosie’s remaining medical issues is slow but steady. The nutritional/gastrointestinal teams have reassessed Rosie’s digestive system, and adjusted her nutritional intake a bit: she was not gaining weight adequately to alleviate some of the physical symptoms in her abdomen which make it difficult for her to process food taken by mouth, so is still reliant on a feeding tube for her calories. The other significant news surgically is that the repair to her right kidney is scheduled for this coming Friday, 27 January, at which point it’s hoped that Rosie will lose the nephrostomy drain in her right side, and will be able to begin the process of managing her bladder output more actively. In due course this will become a part of her rehabilitation therapy.
We still don’t have a firm date for the move to Bloorview – the process is well under way, with introductory visits for Kate and Doug scheduled this week, and briefings and phone calls between medical teams taking place regularly. After the kidney surgery we should have a clearer picture of when Rosie will be ready to make that transition.
Last edited by SchnookoLoly; Jan 26th 2017 at 1:49 pm.
Jan 26th 2017, 2:11 pm
#248
Concierge
Joined: May 2006
Location: ex ex-pat, in Taunton
Posts: 27,214
Re: Some difficult news from Oakvillian
An update from Rosie's Facebook page, found here: https://www.facebook.com/TheRosieSpa...type=3&theater (Includes a picture of Rosie's shopping trip!)
Excitement and frustration
It’s been another busy couple of weeks for Rosie. Since the removal of her tracheostomy, the new-found freedom to move around the hospital without a medical retinue has been a huge boost to morale. We’ve discovered all sorts of interesting parts of the building – including a rather lovely glass atrium with trees and waterfalls, that’s actually in the building next-door but connected by a footbridge to the main hospital.
Most excitingly, though, Rosie was given permission to leave the bounds of the hospital altogether, taking a wheelchair-accessible taxi to a local shopping mall. Retail therapy, it seems, is a genuine medically-approved procedure! Seriously, though, the important aspect of the trip was to get Rosie comfortable with being away from immediate medical support, and to allow her to experience being in a public place in her wheelchair. We were able to buy some wheelchair-friendly clothes, too, which was an added bonus.
This trip was to have been the precursor to a visit home on Wednesday evening, but alas, three-quarters of the household succumbed to a tummy bug on Tuesday night and that plan was abandoned as it would be counterproductive for Rosie to come home to a house full of sick people. So we’re regrouping for early next week instead.
In the meantime, progress on Rosie’s remaining medical issues is slow but steady. The nutritional/gastrointestinal teams have reassessed Rosie’s digestive system, and adjusted her nutritional intake a bit: she was not gaining weight adequately to alleviate some of the physical symptoms in her abdomen which make it difficult for her to process food taken by mouth, so is still reliant on a feeding tube for her calories. The other significant news surgically is that the repair to her right kidney is scheduled for this coming Friday, 27 January, at which point it’s hoped that Rosie will lose the nephrostomy drain in her right side, and will be able to begin the process of managing her bladder output more actively. In due course this will become a part of her rehabilitation therapy.
We still don’t have a firm date for the move to Bloorview – the process is well under way, with introductory visits for Kate and Doug scheduled this week, and briefings and phone calls between medical teams taking place regularly. After the kidney surgery we should have a clearer picture of when Rosie will be ready to make that transition.
Excitement and frustration
It’s been another busy couple of weeks for Rosie. Since the removal of her tracheostomy, the new-found freedom to move around the hospital without a medical retinue has been a huge boost to morale. We’ve discovered all sorts of interesting parts of the building – including a rather lovely glass atrium with trees and waterfalls, that’s actually in the building next-door but connected by a footbridge to the main hospital.
Most excitingly, though, Rosie was given permission to leave the bounds of the hospital altogether, taking a wheelchair-accessible taxi to a local shopping mall. Retail therapy, it seems, is a genuine medically-approved procedure! Seriously, though, the important aspect of the trip was to get Rosie comfortable with being away from immediate medical support, and to allow her to experience being in a public place in her wheelchair. We were able to buy some wheelchair-friendly clothes, too, which was an added bonus.
This trip was to have been the precursor to a visit home on Wednesday evening, but alas, three-quarters of the household succumbed to a tummy bug on Tuesday night and that plan was abandoned as it would be counterproductive for Rosie to come home to a house full of sick people. So we’re regrouping for early next week instead.
In the meantime, progress on Rosie’s remaining medical issues is slow but steady. The nutritional/gastrointestinal teams have reassessed Rosie’s digestive system, and adjusted her nutritional intake a bit: she was not gaining weight adequately to alleviate some of the physical symptoms in her abdomen which make it difficult for her to process food taken by mouth, so is still reliant on a feeding tube for her calories. The other significant news surgically is that the repair to her right kidney is scheduled for this coming Friday, 27 January, at which point it’s hoped that Rosie will lose the nephrostomy drain in her right side, and will be able to begin the process of managing her bladder output more actively. In due course this will become a part of her rehabilitation therapy.
We still don’t have a firm date for the move to Bloorview – the process is well under way, with introductory visits for Kate and Doug scheduled this week, and briefings and phone calls between medical teams taking place regularly. After the kidney surgery we should have a clearer picture of when Rosie will be ready to make that transition.
Jan 27th 2017, 1:42 am
#249
Crazy Cat Lady
Joined: Apr 2004
Posts: 65,493
Re: Some difficult news from Oakvillian
Such good news.
Jan 27th 2017, 1:46 am
#250
SUPER MODERATOR
Joined: Dec 2005
Posts: 88,022
Re: Some difficult news from Oakvillian
Brilliant news!!
Jan 27th 2017, 2:04 am
#251
Cup of tea, Father?
Joined: Oct 2004
Location: Underground, overground, wombling free
Posts: 6,895
Re: Some difficult news from Oakvillian
Great to hear that a trip home is planned soon - such an important milestone. 
Jan 27th 2017, 12:52 pm
#252
Professional Cat herder
Joined: Apr 2007
Location: TORONTO- yay!!!
Posts: 5,707
Re: Some difficult news from Oakvillian
thinking of her when she has her surgery today.
Jan 27th 2017, 2:16 pm
#254
:)
Joined: Jun 2009
Posts: 133
Re: Some difficult news from Oakvillian
And me. Good luck Rosie
Feb 2nd 2017, 10:46 am
#255
Concierge
Thread Starter
Joined: Jun 2011
Location: Oakville, ON, CA
Posts: 8,320
Re: Some difficult news from Oakvillian
For those who haven't seen the Facebook update:
Recovery and the Road to Rehab
Rosie spent nearly six hours in surgery on Friday last week. The surgical team had briefed us on a range of possible outcomes, and it seems what actually transpired is very much at the better end of that spectrum. The short version is that, after some creative work by the urologists, Rosie now has two properly functioning kidneys again, and is recovering very well from the operation.
On Sunday we were able to arrange another visit from Tango. Although Rosie was still quite sore after her surgery, she was very pleased to see him! It doesn't quite make up for having had to postpone Rosie's visit home, but was the next best thing...
Her therapists (OT and physio) are now very keen to expedite Rosie’s transfer to Bloorview. The latest news is that they will consider her medically ready by the middle of next week, and she will likely take the first available bed on or after February 8. This is very exciting, as well as daunting, for Rosie (and everyone else!) and will mean yet another change of routine at home as we get used to the journey across Toronto. There’s no doubt Rosie will be happy there – but we are also very much looking forward to being able to get her home for visits!
https://m.facebook.com/TheRosieSparklesFund/photos/a.664066007105356.1073741828.663320460513244/690604654451491/?type=3¬if_t=notify_me_page¬if_id=1485989847 438519&ref=m_notif
Recovery and the Road to Rehab
Rosie spent nearly six hours in surgery on Friday last week. The surgical team had briefed us on a range of possible outcomes, and it seems what actually transpired is very much at the better end of that spectrum. The short version is that, after some creative work by the urologists, Rosie now has two properly functioning kidneys again, and is recovering very well from the operation.
On Sunday we were able to arrange another visit from Tango. Although Rosie was still quite sore after her surgery, she was very pleased to see him! It doesn't quite make up for having had to postpone Rosie's visit home, but was the next best thing...
Her therapists (OT and physio) are now very keen to expedite Rosie’s transfer to Bloorview. The latest news is that they will consider her medically ready by the middle of next week, and she will likely take the first available bed on or after February 8. This is very exciting, as well as daunting, for Rosie (and everyone else!) and will mean yet another change of routine at home as we get used to the journey across Toronto. There’s no doubt Rosie will be happy there – but we are also very much looking forward to being able to get her home for visits!
https://m.facebook.com/TheRosieSparklesFund/photos/a.664066007105356.1073741828.663320460513244/690604654451491/?type=3¬if_t=notify_me_page¬if_id=1485989847 438519&ref=m_notif