Brat1

So, I finally got my MRI for my brain and just got the results this week. It seems I've got a pineocytoma, which is a tumor on the pineal gland, right in the middle of the brain. The consultant has told me that he's "almost sure" that this is what it is and that it's benign but they will have to monitor it and I will be re-called in 6 months time to see if its grown. Bad news is that it explains all my symptoms, which are getting slightly worse ie headaches/migraines/visual stuff going on/dizziness etc. If this thing grows, it would cause hydrocephalus because it will eventually block the flow of cerebro-spinal fluid and I would then require a shunt to be put in. So all in all, I suppose this is good news, they don't think it's a malignant mass, so why do I not feel relieved I think its because I still have to get the CT scan on my chest to check the "abnormal" lymph nodes they found when I got an x-ray done when I had bronchitis. If this is a test to see if my future lies in the US, then there isn't much else they can throw at me at this point, so bring it on!!! With everything, I still love my life here at this point and the more things that happen, the more determined I am to make this work for our family. Just thought I'd share, don't quite know what I'd do without you guys

SarahG

Sending you hugs. Glad you at least know what it is now and is not too sinister. If you ever want to rant feel free to send me a FB message.
My mum has had several CT scans over the years (she seems to be collecting illnesses and Dr's don't know what is currently wrong with her) Anyway, when she had her first scan and she saw her brain on the screen later on, she was glad as she now had proof it was actually there! She asked if she could have a wallet size pic of it for the next time someone called her stupid or brainless! They didn't give her one though.

Brat1

Ha ha - luv it Sarah. Bit different to home here too, they give you the MRI results on a dvd, I've never had that back home

Nutmegger

Sending hugs and support -- someone with your fantastic, upbeat attitude is going to beat whatever life throws at you!

AmerLisa

Here's hoping you only get good news on everything!

Sally Redux

Aw, sorry to hear you're having to deal with all this but at least they've found out the cause of your symmptoms. Hang in there!

Rete

Thinking of you, love, and crossing fingers for a positive "negative" response on the CT.

nethead

+1 Hope the CT scan is clear and you don't get any more problems.

lansbury

What everyone else has said from me too.

katybluewater

Stay positive - will be keeping my fingers crossed for you xx

Twigstar

sending you hugs

Britishbees

Love and hugs to you. I hope the scan comes up negative. You have such a great attitude which will help no end. Thinking of you.

bevinva

Sorry about the rough times you are going through. Vent away if you need to, you know where to find me.

Bob

There's some funky software I saw someone work on that would take that data and create a 3D model of the results so you can zoom around your innards

Anyway, hope all goes well!

nethead

Oooo that sounds cool. By the way the only reason they give you them on DVD is so you have them to take to whatever specialist/doctor you may have to see. They aren't doing it out of generosity.