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Thyroid Thread - Part Deux

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Thyroid Thread - Part Deux

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Old Mar 18th 2012 | 12:40 pm
  #406  
 
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Default Re: Thyroid Thread - Part Deux

Originally Posted by ausi dream
That's right! It wasn't long before the B12 that i was diagnosed by my rhumatologist as having Sjogrens.

they said they had suspicions that i had had Sjogrens for a long time - but still does not want to put me on any medication apart from the eye drops and mouth spray - which has a disgusting taste.

I go back in a couple of months , so will re aces my conditions with them and see what they are going to do.

They constantly keep a check for my lungs and all seems fine.

If as you say the muscular pain is cased by the Sjogrens and not the B12, then perhaps when i have the glands removed it might all stop - and i will be pain free
Dont think the muscle pains will go Im afraid, it might help the salivary glands but the general aches and rheumatic pains that come with Sjogrens are another part of this bloody horrible 'Gift that keeps on giving'

Be firm with them, so many of us get fobbed off, I had one nurse say to me 'Your dry eyes are menopause and Sjogrens is nothing but a mild inconvenience of dry eyes and mouth'

Keep a pain and symptom diary and see what he says about Plaquenil - I am so glad my specialist recommended it to me. I think I am on steroids for a few months but they have made such a difference to me.
 

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