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Old Jun 20th 2004 | 1:01 am
  #46  
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I must stop being flippant.
I must stop being flippant.
I must stop being flippant.
I must stop being flippant.
I must stop being flippant.
I must stop being flippant.
I must stop being flippant.
I must stop being flippant.
I must stop being flippant.
I must stop being flippant.
I must stop being flippant.
I must stop being flippant.
I must stop being flippant.
...
...
 
Old Jun 20th 2004 | 1:02 am
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Originally posted by DagBoy
They have ADHD?!?!?!?!?!?!?

Jeez - you might have told me.
Haha, very funny dear, I think I did, but you probably werent paying attention
 
Old Jun 20th 2004 | 1:16 am
  #48  
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Mrs D - and others - thank you for sharing all of this with us, it must have taken some courage to type it all in, & see it on the page. Well done, all of you. Makes me thank my lucky stars that in my parental role I never had to deal with anything like this - it would have been a tough call.

FWIW, I have a girlfriend who has two boys, one who has been on ritalin for years and the other of whom is severely asthmatic. Last time I saw her, she said that she was far more worried about the side effects of the steroids that the asthmatic is taking than the ritalin. The boy taking the ritalin has now turned into a delightful teenager (yes, there is such a thing ), with such a strong musical talent that he is composing complex work, such as entire symphonies. Blimey! She maintains that a combination of ritalin, strict diet control, challenging hobbies and a school that stretches him intellectually have made all the difference. My hat goes off to her for the many years of hard work she's put in to bringing him up, too.

Meanwhile, I'm looking forward to the day in the distant future, when his work gets premiered at The Proms, and I can boast 'I knew ***** when he was just a lad!'.

Anya.
 
Old Jun 20th 2004 | 1:17 am
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Originally posted by MrsDagboy
Mark, sorry, maybe I should have used a different drug & condition than asthma, but I hope you get the idea.
Apologies not necessary, quite the opposite. I was trying to say that it was knowledge of the long-term (well actually not even that long) effects of asthma treatment that led me to wonder about Ritalin etc, so your example was spot on.
 
Old Jun 20th 2004 | 1:31 am
  #50  
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Originally posted by MrsDagboy
Hi Malcom, to be absolutely honest, we personally feel that if we hadnt got help when we did & didnt give them the medication then theres a good chance that at least one of them might be dead by now. Might sound melodramatic, but there are only so many times that you can stop a 5 year old child (who should know better by then anyway) from playing with electrical sockets. Or running heedlessly onto the road or into a very dangerous situation. The medication curbs the impulsivity & stops that *rabid dog syndrome* where they are completely unaware of their surroundings. When they were younger, I had to put them on reins anytime they were out of the house because they would literally just start running & keep going, taking no heed of where they were going & usually in opposite directions LOL.

As for the quality of life, for me, Im just glad that the kids lives have improved so much. They have gone from 2 little boys that literally couldnt sit still long enough to hold a pencil, learn the alphabet or learn anything at all to being in the top 3 or 4 kids in their class. To me, thats the biggest achievement of all, no matter how hard it is for me at times (& as you know its still hard, even with the medication!), if their lives can be improved that much then that makes me incredibly happy.

Mark, sorry, maybe I should have used a different drug & condition than asthma, but I hope you get the idea. As for the relief bit, I cant speak for anyone else but no, its not something that I usually talk about with people, I try never to even tell people that I know that they have ADHD unless I absolutely have to, because the doubting thomases come out of the woodwork. I would never discuss the stuff that Im typing now with anyone, I guess the internet gives you that anonimity to admit that you have trouble coping etc. I have a friend with an ADHD son & 2 friends with aspergers sons, I wouldnt ever dream of talking to them about it apart from general stuff like medications, but then maybe thats just me .

Donna, only 1 place in Brisbane that I have found that does the LA Ritalin cheaper & thats here ePharmacy , they charge around $38/bottle (unless its gone up since the beginning of the year when we last bought it) when our boys were on Ritalin we used to pay $140+/month on medications, so yes its not cheap. Some of that was able to be claimed back on private health insurance (about $50/month) but there was a limit on how much you could claim in a year. Dexamphetamine (which they are on now) is on the PBS, so 100 tablets (which last around 1 month for 1 child) now costs us $21, so just over $40/month.

Mrs DB i dont think you are being melodramatic at all, the amount of times Andrew has been pulled back from walking onto busy roads is incredible. You must be very proud of your twins now that they are doing so well at school and they will of course also be enjoying the benefits of their medication.

i also agree that talking to people who do not have ADHD kids can be very difficult, some people laugh it off with the below comments

" he is just a typical boy"
" he is just high spirited"
" just plain naughty"

A typical boy!! even my own mum & dad have came away with that one!!

As i told the most eminent expert in Great Britain on ADHD, i am more of an expert on ADHD than you are because me & donna live with it day in & day out,

Well anyway rant over!! again thanx for the support, it is much appreciated.
 
Old Jun 21st 2004 | 4:10 am
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As a teacher and Special Needs Co-ordinator at a school I have had lots of kids with add, adhd and related (dyspraxia and autistic spectrum) disorders in school, and the numbers are increasing every year.

Ritalin has been a saving grace for many of these kids, and their parents, siblings and teachers. For others its not been right and other medications have improved their lifestyle. For all but one of these kids medication has been helpful.

My own son has add, dyspraxia and mild autistic tendencies. He hated himself, had an awful time at school, found it difficult to make and maintain friendships and would often say how he wished he was dead. The lack of sleep was exhausting and the constant anxiety of what he would do next was frightening, because he had no concept of consequences of his behaviour.

Eventually we felt we had no option but to medicate him and it was the best thing that ever happened to him. He became a different child overnight, able to sit still for the first time ever, able to follow a conversation and join in with it, and began to think about how his behaviour may effect others and visa versa. My only regret is not medicating him earlier in his life.

Hes now 17 and it was his choice to come off his tablets earlier this year. Hes now having a great time at college, is very talented in ICT because of, not in spite of his condition, and his condition is so much more manageble on a day to day basis.

As a teacher kids in my class who have any of these quirks are a constant source of life in the classroom. They think in the abstract and often lead the class discussions further than any of the other kids. Their energy and creativity breathes life into others and they are a constant source of inspiration.

In all fairness though after spending 4 years at uni training to be a teacher I had NO training on any of these related conditions. Some teachers don't know how to handle some kids and you know them best, so don't be afraid to offer your advice to a teacher whose pulling her hair out. I'm sure he or she will be grateful.

Laura
 
Old Jun 21st 2004 | 8:30 am
  #52  
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Originally posted by madsad
ACE Good for you & Rhys!! the only true experts on Add & Adhd are the people who deal with it day in & day out, Our son Andrew is double quick & very clever, he just loses interest in things a lot quicker than other kids might, while my son frustrates the life out of me, i am fiercely proud of him and realise that every small battle for him is a war won. I am sure you feel the same way about Rhys. Good for you ace, if you want to talk further PM us any time.

Regards The Madsads.
Thanks so much for your kind words.

I understand when you say you are fiercely proud of Andrew, I feel exactly the same. People very often cannot see beyond the problems and fail to see the sensitive and often intelligent child that resides within.

Kind Regards
ACE
 
Old Jun 21st 2004 | 9:07 am
  #53  
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[QUOTE]Originally posted by MrsDagboy
God, so many things I can relate to in this thread. Agree totally with ACE, people can have empathy, but until you actually have to see your child suffer with it just doing the most simple task every single day, you really cant comprehend the magnitude of the problem. The day that things changed for me was the day that they could get dressed by themselves at almost 5 years old - before they started taking medication they had never ever been able to get any single piece of clothing on without me actually manipulating their body & their limbs because they literally couldnt concentrate long enough to be able to pick up their pants & put a leg in each hole. [QUOTE]

Having had to cope with one child with ADD I can't only imagime what it must have been like coping with two

[QUOTE]
The stigma thats attached to the disorder is strong isnt it? So many people dont believe that it exists or that a child has it. If a parent said "My child has schitzophrenia", "My child has asthma" or "My child is autistic" no one would even question it, yet as soon as someone says "My child has ADHD" there are people who will tell you that theres no such thing, it doesnt exist, its a "made-up" disease, children are misdiagnosed, all that they need is a good smacking, "spare the rod & spoil the child", parents let their kids get away with so many things these days, how can he have ADHD if he can play a computer game for hours on end blah blah blah . For every person that reads this thread & believes that it exists, there will be someone who thinks one of the above thoughts. Ive lost track of the number of times I have had snide comments made to me about my kids behaviour, one woman told us once that obviously we needed to learn how to use a wooden spoon in our household (Dagboy reminded me of this one this afternoon). Even one of my boys teachers once referred to his "alleged ADHD", I told her that I was happy to send him to school without his medication one day. Once she saw him with his medication wearing off she soon changed her opinion. :scared: [QUOTE]

Most people that I mention it to make the right noises but you can often see the doubt in their eyes. My mother-in-law keeps saying "how comes children never had this years ago?" and "I don't agree with giving children drugs". Strange as she has never objected to his asthma medication eventhough his ADD had a much more devastating affect on his ability to function.


[QUOTE]
Something that I noticed with most of the people who have posted in this thread is how little medication you seem to have to give your children. When ours were on Ritalin, Michael (whos the most badly affected) was on 2 x 20mg Ritalin LA per day (one in the morning & one at lunch). Hes now on Dex & takes 5 x 5mg tablets/day = 25mg/day (2½ in am, 1½ at lunch & 1 after school). Hes only 6. Has anyone else found that they have had to increase the dosage as the body gets used to the drug & it doesnt respond as well? C gets 3½ tabs/day (1½,1,1).[QUOTE]

You shouldn't beat yourself up about it. Every child requires different levels of medication which are affected by their weight and metabolism. The thing to remember about Ritalin is that it has a very short 'half life' which is why you have to administer it through the day. It does not work cumulatively, when it wares off it does not leave any residue in the system.

Ace, your story is great, gives focus to the problems that many of us face. Im so glad that Rhys is happy again, in alot of cases thats half the battle won . [QUOTE]

Thanks Mrs Db, It was really tough. At our lowest point Rhys was severly depressed, I was half way through the second year of my Computing degree and we were all adjusting to the arrival of my youngest Ryan. One year on and everything is, thankfully, so different.

All the best
ACE
 
Old Jun 21st 2004 | 9:14 am
  #54  
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Originally posted by madsad
Thanx Mrs Dagboy, as you say there is a guilt thing about medicating your kids (this is Mr Madsad by the way) but the way we look at it is you are also giving them a much better quality of life, Ritalin has made a massive difference to our family as i am sure it has for your's, thanx for your support.

Regards

Malcolm

ps. your twins sound like great fun!!
I totally agree.

ACE
 
Old Jun 21st 2004 | 9:32 am
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Originally posted by MarkMyWords


Just a thought... many of the parents here are expressing great relief that they're not alone. Do you not ever see other parents and children in the same boat? It would surely reduce the guilt if you did. Maybe the stigma gets in the way. I certainly don't go out of my way to find other sufferers from depression and the recent thread on that subject did seem to bring people out of the woodwork in much the same way as this one is doing.
There are a few children at my sons school whom I suspect have similar problems to Rhys. The parents of these children never discuss their problems probably for much the same reasons as have been mentioned in this thread.
 
Old Jun 21st 2004 | 10:47 am
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Originally posted by MSB
As a teacher and Special Needs Co-ordinator at a school I have had lots of kids with add, adhd and related (dyspraxia and autistic spectrum) disorders in school, and the numbers are increasing every year.

Ritalin has been a saving grace for many of these kids, and their parents, siblings and teachers. For others its not been right and other medications have improved their lifestyle. For all but one of these kids medication has been helpful.

My own son has add, dyspraxia and mild autistic tendencies. He hated himself, had an awful time at school, found it difficult to make and maintain friendships and would often say how he wished he was dead. The lack of sleep was exhausting and the constant anxiety of what he would do next was frightening, because he had no concept of consequences of his behaviour.

Eventually we felt we had no option but to medicate him and it was the best thing that ever happened to him. He became a different child overnight, able to sit still for the first time ever, able to follow a conversation and join in with it, and began to think about how his behaviour may effect others and visa versa. My only regret is not medicating him earlier in his life.

Hes now 17 and it was his choice to come off his tablets earlier this year. Hes now having a great time at college, is very talented in ICT because of, not in spite of his condition, and his condition is so much more manageble on a day to day basis.

As a teacher kids in my class who have any of these quirks are a constant source of life in the classroom. They think in the abstract and often lead the class discussions further than any of the other kids. Their energy and creativity breathes life into others and they are a constant source of inspiration.

In all fairness though after spending 4 years at uni training to be a teacher I had NO training on any of these related conditions. Some teachers don't know how to handle some kids and you know them best, so don't be afraid to offer your advice to a teacher whose pulling her hair out. I'm sure he or she will be grateful.

Laura
Hi Laura,
I can really relate to your comments about your son hating himself, Rhys was exactly the same.

Your attitude is so refreshing, I know from my experiences that teachers who are ignorant to the problems of these conditions or unwilling to admit that they are real can really damage children.

As a result of our experiences I have decided to become a teacher. I hope that I will be able to recognise and help children with these problems. I have just finished my computing degree and will be starting my PGCE in September. When discussing ADD with my course director I was quite suprised by his lack of knowledge on the subject but very encouraged by his interest. My intention is to continue with my research over the next two years and base my masters thesis on how teacher training might be enhanced to improve teachers' ability to recognise and cope with these children.

All the best
ACE
 
Old Jun 21st 2004 | 11:43 am
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First of all what the ... is dyspraxia, symptoms please. Is it another name for dyslexia? MY son Jake is ADD and dyslexic which is when they reverse letters and numbers because it looks the same both ways, and they have to concentrate a lot more that normal people before they write a b or a d for example.
Also they tend to write words how they sound like every could say evre. I home schooled Jake upto the age of 11 and knew there was a big problem with his learning cos he no recall on anything he learnt and after holidays we would be back to square 1. I didnt want a label on him so never got him assessed till age 11 and the pediatrician agreed with my assessment, and we decided to try Ritilen (I was also on it when I was a kid, in those days I was called hyperkinetic) Jake just plain couldnt concentrate and would wriggle about and not be able to read a simple reader without constantly changing the subject and asking me irrelevant questions or wanting a drink of water or dropping of the chair which he was leaning back on etc. But I am relieved to say now that the Ritilen has made a big difference in his concentation but not to his personality. He has improved alot with his learning but his dyslexia will be with him forever as its not something you can change only learn to work around it. (Did you know Tom Cruise is dyslexic) Jake is a very keen dirtbike rider and rides a CR125 like a mad man doing huge jumps with no fear he wants to be a professional Freesyle Rider one day. He will be 14 in October and is now doing fine without the Ritilen since I ran out 2 weeks ago. I might get some more before I go not sure yet he only had one slow release in the morning and it was worn off by the time I got home, but I havnt had any complaints from the teachers about him. Well thats a bit more than 10cents worth just thaught I would share this. Bye for now Catherine.
 
Old Jun 21st 2004 | 4:59 pm
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Hi All,
One more thing i would like to query,especially to the parents of children with ADHD or ADD.
Iknow there has been much research over the years as to the fact that children with this condition/disorder may have parents or other family members who infact had the same/simillar problems,Do any of you parents or any of your direct family members have the condition?
I am sure as of even now there is still no concrete evidence or proven facts that this is Genetic or passed on from one parent to another?
I ask as we do have one direct link within our family & i personally do think that maybe it does have something to do with a gene or some sort of "make up" within the child/family?
It would be interesting to see just how many of us parents do have some sort of link within our families?
I hope this makes sense?!
Donna.
 
Old Jun 21st 2004 | 5:18 pm
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Originally posted by madsad
Hi All,
One more thing i would like to query,especially to the parents of children with ADHD or ADD.
Iknow there has been much research over the years as to the fact that children with this condition/disorder may have parents or other family members who infact had the same/simillar problems,Do any of you parents or any of your direct family members have the condition?
I am sure as of even now there is still no concrete evidence or proven facts that this is Genetic or passed on from one parent to another?
I ask as we do have one direct link within our family & i personally do think that maybe it does have something to do with a gene or some sort of "make up" within the child/family?
It would be interesting to see just how many of us parents do have some sort of link within our families?
I hope this makes sense?!
Donna.
Hi Donna

Sent you a PM. Not to sure if there has been any research into genetic links. CAF may be able to answer your questions.

Walla
 
Old Jun 21st 2004 | 8:58 pm
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Originally posted by madsad
Hi All,
One more thing i would like to query,especially to the parents of children with ADHD or ADD.
Iknow there has been much research over the years as to the fact that children with this condition/disorder may have parents or other family members who infact had the same/simillar problems,Do any of you parents or any of your direct family members have the condition?
I am sure as of even now there is still no concrete evidence or proven facts that this is Genetic or passed on from one parent to another?
I ask as we do have one direct link within our family & i personally do think that maybe it does have something to do with a gene or some sort of "make up" within the child/family?
It would be interesting to see just how many of us parents do have some sort of link within our families?
I hope this makes sense?!
Donna.
Hi Madsad,
We haven't actually had anyone diagnosed ADD but my husbands uncle, on his fathers side, struggled terribly at school and eventually went on to develop serious depression and drink related problems. He committed suicide aged 40. Two of his three sons followed a similar pattern, both were depressed and both of them died, within months of each other, last year in their 20's. Both deaths were suspected suicides but the official verdict was death by misadventure. They may have had another mental illness but you can imagine may horror when Rhys started to show signs of depression and difficulties with his school work.

Kind Regards
ACE
 


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