Livers - more hassle than they're worth?
#1
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Joined: Apr 2006
Posts: 1,118
Livers - more hassle than they're worth?
well there's me worring about abnormal bloods and perhaps I had a fatty liver. Just had a consultancy and ultrasound done (£344 kerchinggggg). I dont have a fatty liver. hooray!
but, i do have nodules on my liver.
boooooooo!
so they are now talking about CT and MR scans and a biopsy.
can someone enlighten me here please? I am female, 30 - what the hell is going on? i am not a drinker!
are NZIS going to let us in now? my deadline for submitting forms is 7th november. shall i just go ahead and submit what i have got and save the consultant report for when they ask for it??!!
one thing after the other.... i cant believe it.
on the upside, i have had an ultrasound and picked up something i would not normally have known about.
but, i do have nodules on my liver.
boooooooo!
so they are now talking about CT and MR scans and a biopsy.
can someone enlighten me here please? I am female, 30 - what the hell is going on? i am not a drinker!
are NZIS going to let us in now? my deadline for submitting forms is 7th november. shall i just go ahead and submit what i have got and save the consultant report for when they ask for it??!!
one thing after the other.... i cant believe it.
on the upside, i have had an ultrasound and picked up something i would not normally have known about.
#2
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Joined: Oct 2006
Location: Albany, North Shore
Posts: 298
Re: Livers - more hassle than they're worth?
Originally Posted by dreamfish
well there's me worring about abnormal bloods and perhaps I had a fatty liver. Just had a consultancy and ultrasound done (£344 kerchinggggg). I dont have a fatty liver. hooray!
but, i do have nodules on my liver.
boooooooo!
so they are now talking about CT and MR scans and a biopsy.
can someone enlighten me here please? I am female, 30 - what the hell is going on? i am not a drinker!
are NZIS going to let us in now? my deadline for submitting forms is 7th november. shall i just go ahead and submit what i have got and save the consultant report for when they ask for it??!!
one thing after the other.... i cant believe it.
on the upside, i have had an ultrasound and picked up something i would not normally have known about.
but, i do have nodules on my liver.
boooooooo!
so they are now talking about CT and MR scans and a biopsy.
can someone enlighten me here please? I am female, 30 - what the hell is going on? i am not a drinker!
are NZIS going to let us in now? my deadline for submitting forms is 7th november. shall i just go ahead and submit what i have got and save the consultant report for when they ask for it??!!
one thing after the other.... i cant believe it.
on the upside, i have had an ultrasound and picked up something i would not normally have known about.
#4
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Location: Albany, North Shore
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Re: Livers - more hassle than they're worth?
Originally Posted by hazeandsteve
THE LIVER IS EVIL AND MUST BE PUNISHED
#5
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Re: Livers - more hassle than they're worth?
Okay, not so sure that Ultra sound is conclusive to exclude fatty liver. I had an ultrasound that was 100% normal yet my gamma GT remains elevated. Generally fatty liver (mild) cannot be detected by Ultra sound and is prevalent amongst those who are overweight!!! (mmm, that me!)
The blood results you sent me are not typical of non alcoholic fatty liver disease so if the ultra sound shows nodules then perhaps it is another issue. I myself am waiting to see if NZIS want a biopsy, it seems for both of us the only way to go. I will have a word with our GI nurse specialist and pm you. Could you get referred for biopsy on the NHS?
You would not want to pay for that (megga bucks).
You will need to put in all the information you have by your deadline but I WARN YOU referrals are a mega long process mine have been bouncing back since June and I currently await decision. Take care I will pm you. Drink at least 8 glasses of water a day, refrain from ANY alcohol make sure your cholesterol and fasting glucose are OK (just in case you have un-diagnosed diabetes) and most of all keep your chin up. We need to set up the faulty liver forum!!!
The blood results you sent me are not typical of non alcoholic fatty liver disease so if the ultra sound shows nodules then perhaps it is another issue. I myself am waiting to see if NZIS want a biopsy, it seems for both of us the only way to go. I will have a word with our GI nurse specialist and pm you. Could you get referred for biopsy on the NHS?
You would not want to pay for that (megga bucks).
You will need to put in all the information you have by your deadline but I WARN YOU referrals are a mega long process mine have been bouncing back since June and I currently await decision. Take care I will pm you. Drink at least 8 glasses of water a day, refrain from ANY alcohol make sure your cholesterol and fasting glucose are OK (just in case you have un-diagnosed diabetes) and most of all keep your chin up. We need to set up the faulty liver forum!!!
#6
Thread Starter
Joined: Apr 2006
Posts: 1,118
Re: Livers - more hassle than they're worth?
LOl its mad isnt it. Thanks Frenchy. Since i wrote to you last, i had another set of bloods done, and they were fine, except for the ALT.
all the others absolutely normal.
my panel quack suggested for peace of mind seeing a gastroenterologist.
my gp wouldnt refer me saying it wouldnt happen very quick on the nhs, so i went private. saw a consultant last night who had a prod and said lets do an ultrasound on your gall bladder and liver.
this afternoon they did the ultrasound and he was quite chatty till he saw these nodules. there are a cluster of them on my right side. they are very dark and look like little craters on an ultrasound. he then went on to say right we need to get you scans and biopsy. he suggested it would be quicker on the NHS and of course less cost. He went and typed off the report there and then while i was getting dressed (havent had to undress for so many strangers as i have these past couple months!!! {not since i gave up pole dancing joke).
i called my gp when i got home and he was sympathetic but worried. he has asked me to go and see him once he has a copy to talk about it.
i am gonna give my uncle a call shortly - he's a gp, see if i can get some ideas.
lets hope they are just cysts.
keep you all posted.
all the others absolutely normal.
my panel quack suggested for peace of mind seeing a gastroenterologist.
my gp wouldnt refer me saying it wouldnt happen very quick on the nhs, so i went private. saw a consultant last night who had a prod and said lets do an ultrasound on your gall bladder and liver.
this afternoon they did the ultrasound and he was quite chatty till he saw these nodules. there are a cluster of them on my right side. they are very dark and look like little craters on an ultrasound. he then went on to say right we need to get you scans and biopsy. he suggested it would be quicker on the NHS and of course less cost. He went and typed off the report there and then while i was getting dressed (havent had to undress for so many strangers as i have these past couple months!!! {not since i gave up pole dancing joke).
i called my gp when i got home and he was sympathetic but worried. he has asked me to go and see him once he has a copy to talk about it.
i am gonna give my uncle a call shortly - he's a gp, see if i can get some ideas.
lets hope they are just cysts.
keep you all posted.
#7
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Re: Livers - more hassle than they're worth?
Sending you Lol and hope all OK, I had a quick look on the net for you and suddenly remember back from my training days (years ago!) about the hormonal effect on the liver. You had a baby 6 months ago yes?
take a look at this thread, I also had to have the whole spectrum of bloods that I am sure your GI consultant is setting up (ferritin. AFP etc) anyway have a look at this and let me know what your uncle thinks. I am told liver biopsy not too bad, bit scared myself though so I know how you must feel. Take care be thinking of you
take a look at this thread, I also had to have the whole spectrum of bloods that I am sure your GI consultant is setting up (ferritin. AFP etc) anyway have a look at this and let me know what your uncle thinks. I am told liver biopsy not too bad, bit scared myself though so I know how you must feel. Take care be thinking of you
#9
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Re: Livers - more hassle than they're worth?
Originally Posted by Frenchy
#10
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Re: Livers - more hassle than they're worth?
[QUOTE=Maz1]Does anybody know or has anyone had a problem with the liver test and still got accepted by the NZIS.
Hi
i have had Pm's from people who have been accepted EVENTUALLY, they will keep asking for further investigations until they are 100% according to my case officer the last process is a medical waiver. At the moment I await opinion from the 3rd lot of info that I sent them regarding my elevated liver function tests. First time I provided my surgeons letter saying that my ultrasound liver was normal and my liver appeared normal when he took my Gaul bladder out last December. They wanted further explanations so 6 weeks after my submission of this 1st lot of information they asked me to see a specialist. Within 2 weeks I got a gastro specialist opinion (simple fatty liver). 6 weeks delay after they asked for a prognosis so again 1 week later I got that from the specialist (luckily I work at the same hospital). On the positive side letter states good prognosis, normal life expectancy but on the down side says it would be impossible to give 100% picture without a liver biopsy.
So once again I await my fate!!
They just keep going with referrals until they are happy!
I also sent a letter in saying that I have worked for the NHS for 26 years (poor old fool eh!), take my health seriously and have made lifestyle adjustments to help with this issue (lost weight, exercise NO alcohol etc) apparently you have to sell yourself! (feels like I have sold my sole).
I also put in my letter that I have had a senior nurse post that I obtained in June and they are still waiting for me!!!!!!
Hi
i have had Pm's from people who have been accepted EVENTUALLY, they will keep asking for further investigations until they are 100% according to my case officer the last process is a medical waiver. At the moment I await opinion from the 3rd lot of info that I sent them regarding my elevated liver function tests. First time I provided my surgeons letter saying that my ultrasound liver was normal and my liver appeared normal when he took my Gaul bladder out last December. They wanted further explanations so 6 weeks after my submission of this 1st lot of information they asked me to see a specialist. Within 2 weeks I got a gastro specialist opinion (simple fatty liver). 6 weeks delay after they asked for a prognosis so again 1 week later I got that from the specialist (luckily I work at the same hospital). On the positive side letter states good prognosis, normal life expectancy but on the down side says it would be impossible to give 100% picture without a liver biopsy.
So once again I await my fate!!
They just keep going with referrals until they are happy!
I also sent a letter in saying that I have worked for the NHS for 26 years (poor old fool eh!), take my health seriously and have made lifestyle adjustments to help with this issue (lost weight, exercise NO alcohol etc) apparently you have to sell yourself! (feels like I have sold my sole).
I also put in my letter that I have had a senior nurse post that I obtained in June and they are still waiting for me!!!!!!
#11
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Joined: Oct 2006
Location: Albany, North Shore
Posts: 298
Re: Livers - more hassle than they're worth?
[QUOTE=Frenchy]
Our consultant actually phoned us with the results, but he didnt seem to bothered about OH tests, he just told my husband to cut down (not stop) on his alcohol intake. OH even went to see his own doctor and told him about the results and he just said to go back after about a month for more blood tests as they usually go back to normal. I phoned the London office for immigration and they said it all depends what the consultant puts in his report as to what happens next. These results are the only thing that is bothering me to stop us from being accepted. We have a job to go to and a house. We even have an accredited letter from OH employer to state this. So we are not going over on a points basis. Will this make a difference? The doc reassured us that my OH state of health is nothing to worry about.
Originally Posted by Maz1
Does anybody know or has anyone had a problem with the liver test and still got accepted by the NZIS.
Hi
i have had Pm's from people who have been accepted EVENTUALLY, they will keep asking for further investigations until they are 100% according to my case officer the last process is a medical waiver. At the moment I await opinion from the 3rd lot of info that I sent them regarding my elevated liver function tests. First time I provided my surgeons letter saying that my ultrasound liver was normal and my liver appeared normal when he took my Gaul bladder out last December. They wanted further explanations so 6 weeks after my submission of this 1st lot of information they asked me to see a specialist. Within 2 weeks I got a gastro specialist opinion (simple fatty liver). 6 weeks delay after they asked for a prognosis so again 1 week later I got that from the specialist (luckily I work at the same hospital). On the positive side letter states good prognosis, normal life expectancy but on the down side says it would be impossible to give 100% picture without a liver biopsy.
So once again I await my fate!!
They just keep going with referrals until they are happy!
I also sent a letter in saying that I have worked for the NHS for 26 years (poor old fool eh!), take my health seriously and have made lifestyle adjustments to help with this issue (lost weight, exercise NO alcohol etc) apparently you have to sell yourself! (feels like I have sold my sole).
I also put in my letter that I have had a senior nurse post that I obtained in June and they are still waiting for me!!!!!!
Hi
i have had Pm's from people who have been accepted EVENTUALLY, they will keep asking for further investigations until they are 100% according to my case officer the last process is a medical waiver. At the moment I await opinion from the 3rd lot of info that I sent them regarding my elevated liver function tests. First time I provided my surgeons letter saying that my ultrasound liver was normal and my liver appeared normal when he took my Gaul bladder out last December. They wanted further explanations so 6 weeks after my submission of this 1st lot of information they asked me to see a specialist. Within 2 weeks I got a gastro specialist opinion (simple fatty liver). 6 weeks delay after they asked for a prognosis so again 1 week later I got that from the specialist (luckily I work at the same hospital). On the positive side letter states good prognosis, normal life expectancy but on the down side says it would be impossible to give 100% picture without a liver biopsy.
So once again I await my fate!!
They just keep going with referrals until they are happy!
I also sent a letter in saying that I have worked for the NHS for 26 years (poor old fool eh!), take my health seriously and have made lifestyle adjustments to help with this issue (lost weight, exercise NO alcohol etc) apparently you have to sell yourself! (feels like I have sold my sole).
I also put in my letter that I have had a senior nurse post that I obtained in June and they are still waiting for me!!!!!!
#12
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Re: Livers - more hassle than they're worth?
Had an e mail fron case officer today...............MEDICALS PASSED................HERE WE COME!!!!!!!!!!!!!!!!!!!!!!!!!!!
There is hope for all us fatty liver bods after all. I am over the moon!!!!!!!!
Going to celebrate with a glass of Bayleys!!!!!!!
There is hope for all us fatty liver bods after all. I am over the moon!!!!!!!!
Going to celebrate with a glass of Bayleys!!!!!!!
#13
Thread Starter
Joined: Apr 2006
Posts: 1,118
Re: Livers - more hassle than they're worth?
Originally Posted by Frenchy
Had an e mail fron case officer today...............MEDICALS PASSED................HERE WE COME!!!!!!!!!!!!!!!!!!!!!!!!!!!
There is hope for all us fatty liver bods after all. I am over the moon!!!!!!!!
Going to celebrate with a glass of Bayleys!!!!!!!
There is hope for all us fatty liver bods after all. I am over the moon!!!!!!!!
Going to celebrate with a glass of Bayleys!!!!!!!
go on, push the boat out, have a double
there is hope for all us offal lovers
#14
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Re: Livers - more hassle than they're worth?
Originally Posted by dreamfish
thats fantastic news!!!!!!!!!!!!!! i am so pleased for you - well done you guys.
go on, push the boat out, have a double
there is hope for all us offal lovers
go on, push the boat out, have a double
there is hope for all us offal lovers
I hope you get on OK dont worry you will soon be there, any news/ thoughts from your uncle?
LOL
#15
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Joined: Apr 2006
Posts: 1,118
Re: Livers - more hassle than they're worth?
Originally Posted by Frenchy
Thank you!
I hope you get on OK dont worry you will soon be there, any news/ thoughts from your uncle?
LOL
I hope you get on OK dont worry you will soon be there, any news/ thoughts from your uncle?
LOL
i am passed researching now - i am going to sit tight, see what happens