Dialysis/Transplant
#1
Dialysis/Transplant
Hi all,
We (husband) were planning on moving back to the UK (I am still advocating for Ontario, though not very loudly anymore) when my husband turned 60, so in 3 years.
A few weeks ago we found out he will need dialysis in the very near future and ultimately a new kidney.
Obviously this has thrown a huge spanner in the works. Has anyone moved back as a dialysis patient? Is this possible? The earliest we could think about moving back would still be 60 as his private pension would be accessible by then.
the thought of having to stay in Alberta for the rest of my life is horrifying.
We (husband) were planning on moving back to the UK (I am still advocating for Ontario, though not very loudly anymore) when my husband turned 60, so in 3 years.
A few weeks ago we found out he will need dialysis in the very near future and ultimately a new kidney.
Obviously this has thrown a huge spanner in the works. Has anyone moved back as a dialysis patient? Is this possible? The earliest we could think about moving back would still be 60 as his private pension would be accessible by then.
the thought of having to stay in Alberta for the rest of my life is horrifying.
#3
BE Enthusiast
Joined: Jul 2008
Location: GTA
Posts: 301
re: Dialysis/Transplant
Hi Piff Poff,
I’m sorry you are having such a difficult time, moving back is daunting without added worries. I was a nurse before leaving for Canada but I’m now 11 years out of date. The following links may be a start and you could also contact the Dialysis Unit for the local hospital if you have an idea where you will returning to. If not, just try any as they may be able to point you in the right direction.
https://www.gov.uk/guidance/using-th...live-in-the-uk
https://www.gov.uk/browse/benefits/disability
https://www.gov.uk/guidance/returning-to-the-uk
Hopefully someone more current will be able to help more.
Regards,
D.
I’m sorry you are having such a difficult time, moving back is daunting without added worries. I was a nurse before leaving for Canada but I’m now 11 years out of date. The following links may be a start and you could also contact the Dialysis Unit for the local hospital if you have an idea where you will returning to. If not, just try any as they may be able to point you in the right direction.
https://www.gov.uk/guidance/using-th...live-in-the-uk
https://www.gov.uk/browse/benefits/disability
https://www.gov.uk/guidance/returning-to-the-uk
Hopefully someone more current will be able to help more.
Regards,
D.
#5
BE Forum Addict
Joined: Jan 2022
Posts: 1,271
re: Dialysis/Transplant
Good luck to you both. It will be a learning curve but there seems to be a lot of support in the UK for dialysis patients x
#6
BE Forum Addict
Joined: May 2007
Location: England
Posts: 4,212
re: Dialysis/Transplant
#7
re: Dialysis/Transplant
I don't know how long between sessions your husband can go, but if you're taking a trip back to the UK there is a whole branch of dialysis scheduling for people on holiday, which would give you the opportunity to check things out "on the ground" for yourselves. I don't see anything about visitors from outside the UK, but this page has a lot of contact information including email addresses.
#8
BE Enthusiast
Joined: Dec 2002
Location: texas
Posts: 910
re: Dialysis/Transplant
These links might help:
https://www.gov.uk/guidance/using-th...live-in-the-uk
https://www.ageuk.org.uk/information...broad-heading/
My Mum returned to the UK from France in 2015 when she was basically dying from a condition called MSA and she was bedridden. We got her into a private nursing home and she was entitled to NHS care immediately. Benefits were a bit slower and as she had excess savings, they had to be used before they would contribute to her nursing home costs (same as any other UK citizen). About 9 months after she returned to the UK, my sister secured a local authority nursing home place nearer her house. By then she was eligible for all benefits. My father also returned home sometime before Mum, as he had a stroke. He was eligible for all the benefits he was entitled to almost immediately. It just takes a while to learn how the system works.
Hopefully, as you have 3 yrs to plan, the kidney transplant will take place before you move.
https://www.gov.uk/guidance/using-th...live-in-the-uk
https://www.ageuk.org.uk/information...broad-heading/
My Mum returned to the UK from France in 2015 when she was basically dying from a condition called MSA and she was bedridden. We got her into a private nursing home and she was entitled to NHS care immediately. Benefits were a bit slower and as she had excess savings, they had to be used before they would contribute to her nursing home costs (same as any other UK citizen). About 9 months after she returned to the UK, my sister secured a local authority nursing home place nearer her house. By then she was eligible for all benefits. My father also returned home sometime before Mum, as he had a stroke. He was eligible for all the benefits he was entitled to almost immediately. It just takes a while to learn how the system works.
Hopefully, as you have 3 yrs to plan, the kidney transplant will take place before you move.
#9
re: Dialysis/Transplant
Addenbrooks Hospital in Cambridge have an excellent dialysis center if you had considered moving to that area. I have one family member that has used this facility and another family member that has volunteered for the local Kidney Association Charity for over 40 years raising money to help dialysis patients with transport, equipment and other needs.
Good luck to you both. It will be a learning curve but there seems to be a lot of support in the UK for dialysis patients x
Good luck to you both. It will be a learning curve but there seems to be a lot of support in the UK for dialysis patients x
Thank you.
My OH had a few different clinic appointments and an operation last year and in each occasions he was asked had we been resident in the UK for …..cannot remember the number of years by that time my husband had been so all was okay but a friend who returned from NZ and had been in the UK only for a few months was not so successful with a knee replacement, not sure if it has changed (it changes all the time here) good luck and I hope all goes well with your OH treatment be it here or in Canada I know how stressful it can be (went through this with my DD) x
I don't know how long between sessions your husband can go, but if you're taking a trip back to the UK there is a whole branch of dialysis scheduling for people on holiday, which would give you the opportunity to check things out "on the ground" for yourselves. I don't see anything about visitors from outside the UK, but this page has a lot of contact information including email addresses.
These links might help:
https://www.gov.uk/guidance/using-th...live-in-the-uk
https://www.ageuk.org.uk/information...broad-heading/
My Mum returned to the UK from France in 2015 when she was basically dying from a condition called MSA and she was bedridden. We got her into a private nursing home and she was entitled to NHS care immediately. Benefits were a bit slower and as she had excess savings, they had to be used before they would contribute to her nursing home costs (same as any other UK citizen). About 9 months after she returned to the UK, my sister secured a local authority nursing home place nearer her house. By then she was eligible for all benefits. My father also returned home sometime before Mum, as he had a stroke. He was eligible for all the benefits he was entitled to almost immediately. It just takes a while to learn how the system works.
Hopefully, as you have 3 yrs to plan, the kidney transplant will take place before you move.
https://www.gov.uk/guidance/using-th...live-in-the-uk
https://www.ageuk.org.uk/information...broad-heading/
My Mum returned to the UK from France in 2015 when she was basically dying from a condition called MSA and she was bedridden. We got her into a private nursing home and she was entitled to NHS care immediately. Benefits were a bit slower and as she had excess savings, they had to be used before they would contribute to her nursing home costs (same as any other UK citizen). About 9 months after she returned to the UK, my sister secured a local authority nursing home place nearer her house. By then she was eligible for all benefits. My father also returned home sometime before Mum, as he had a stroke. He was eligible for all the benefits he was entitled to almost immediately. It just takes a while to learn how the system works.
Hopefully, as you have 3 yrs to plan, the kidney transplant will take place before you move.
Thank you.
#10
limey party pooper
Joined: Jul 2012
Posts: 9,982
re: Dialysis/Transplant
My OH had a few different clinic appointments and an operation last year and in each occasions he was asked had we been resident in the UK for …..cannot remember the number of years by that time my husband had been so all was okay but a friend who returned from NZ and had been in the UK only for a few months was not so successful with a knee replacement, not sure if it has changed (it changes all the time here) good luck and I hope all goes well with your OH treatment be it here or in Canada I know how stressful it can be (went through this with my DD) x
#11
BE Forum Addict
Joined: Aug 2013
Location: Eee Bah Gum
Posts: 4,131
re: Dialysis/Transplant
I agree, it is only current residence that should be relevant. When I went to hospital shortly after returning to England I was asked ahead of time to bring in a utility bill to prove I was resident, not how long I had lived here. I also had to bring in proof I that was eligible to live in the UK such as a passport. Once I had registered as a new patient I was not asked again on future appointments or before my surgery.
#12
BE Forum Addict
Joined: May 2007
Location: England
Posts: 4,212
re: Dialysis/Transplant
#14
re: Dialysis/Transplant
And this is where the the NHS suffers, I am all for people who use the NHS if they have paid into the system over a number of years or exempt from doing so through illness or disability but it is just not sustainable when anyone can use it and yes that means even if your born here and left years ago. The NHS was originally set up to be a free (which it’s not anyway for most we pay through our taxes) system for the UK, you could say straight this at first was an excellent way of thinking as most people had to work “back in the day” as welfare was strictly adhered to but alas with the social benefit system being routinely abused by people there are a lot of people who use the NHS who have never/hardly paid into the system when they really should/could be doing so hence one of the main reasons the NHS is in the “state” it is in. In my opinion the NHS needs a huge overhaul but various governments are afraid to act.
#15