The Thyroid Thread

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Old Aug 19th 2008, 9:19 pm
  #361  
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Default Re: The Thyroid Thread

Originally Posted by TiddlyPom
I think the most user friendly page is probably here at Dr Lam's site:

http://www.drlam.com/a3r_brief_in_do...al_fatigue.cfm

Hope that helps hon.

And when you say 'ok', were your levels just in range, or nicely low at where you feel best?
TiddlyPom i dont know about the levels being where i feel best.

I just have my regular blood test for the level and they tell me to stay on the same level or change to the new level of which it reads.

But my level is and has been 125mcg for quite a long time now.
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Old Aug 19th 2008, 9:46 pm
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Default Re: The Thyroid Thread

Originally Posted by ausi dream
TiddlyPom i dont know about the levels being where i feel best.

I just have my regular blood test for the level and they tell me to stay on the same level or change to the new level of which it reads.

But my level is and has been 125mcg for quite a long time now.
It would help you to know what blood tests you're having and what the results of them are. You can still be 'in range' and very ill, or mal treated.
Ask for your blood test results from your doc. They may charge you but they belong to you and you should have them for your records.
Once you have them, you could pop them on here and we could take a squiz.
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Old Aug 20th 2008, 3:46 pm
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Default Re: The Thyroid Thread

Hi all, just spent some hours reading this thread, and still haven't reached the end of it, but thought I'd post anyway...

I also have an underactive thyroid, diagnosed when I was 24, completely out of the blue after a 'thyroid storm', although I suspect the signs were there for longer and various GPs just put them down to IBS, being run down, or 'something viral'. My thyroid function went downhill very rapidly but was handled badly by my GP who refused to believe that a 24 year old with no family history of thyroid disorder could have an underactive thyroid. It was only after two weeks of sleeping for 22 hours a day and then collapsing on the 100 metre walk to the local shop that I was referred to a consultant. Seven years later and I'm now on 200mcg of thyroxine and feeling fine. Here are some thoughts...

GPs know a lot about thyroid disorders, but some know more than others, and few of them are specialists. At the first sign of problems, I'd push for a referral to a specialist/consultant. I've found that many GPs are obsessed with ranges, whereas it's more important to find someone who treats according to ranges and symptoms. I have often had debilitating symptoms when only just out of the normal range, or even when just in the normal range. It's a range - not everyone will fit into it. My current GP always listens to my symptoms and general well-being as well as looking at my blood test results.

Be prepared for the long haul. It took a good two years for my thyroid to settle, and to find the right dose. Two years of fortnightly blood tests and monthly outpatient appointments, including investigation for a pituitary tumour. It was dispiriting, but worth it in the end. And even though it took that long to sort out, I was already feeling better than I had been within a couple of months of starting treatment.

Face the fact that you will no longer be able to eat what you like without noticing it on the scales, even when sucessfully treated. Although I just see this as a good reason to ensure that I eat a healthy diet and do plenty of exercise (without overdoing it if I'm a bit under). I have a BMI of about 19 at the moment, so it is possible to keep the weight down, although I do work very hard to achieve it, and can pile on the pounds in no time at all if I don't pay attention, or if my function is low.

I don't know how old Nic is, or whether you are considering kids, but having a baby can well and truly stuff your thyroid up for a bit and requires additional care during pregnancy and immediately after. I had a baby 6 months ago and had a bumpy time during pregnancy. My thryoid has only just settled back to normal in the last month or so, having been all over the place postnatally.

Get to know your symptoms - write them down - so that you can become more aware of when your thyroid function might be heading up or down. Keep a note of the really tiny things as well as the big things (as well as the usual exhaustion, my eyebrows thin and my voice gets hoarse and 'stuck' in my throat when my function is low, plus I can't hold my hands above my head).

Take every test going, just to be sure, and quiz the consultant on the results. Most of all, get to know your body and what feels right for you and don't hesitate to jump up and down in front of some member of the medical profession until you get someone to take your symptoms as seriously as your point on the T4/T3 range.

And don't give up hope. I remember my consultant telling me that of all the lifelong conditions to get (e.g diabetes, epilepsy etc), hypothyroidism was perhaps *better* than some in that it is treatable (depending on the cause, of course), and you can get your health pretty much back to normal with a bit of patience and persistence. I think that's true, and I for one feel fine now, even if it did take a while to get to this point. In my mind, you never feel as ill as you did before you were diagnosed, if that makes sense.

Sorry if I'm just repeating what others have said - as I mentioned above, I didn't have time to read all the posts.

Good luck!
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Old Aug 20th 2008, 10:00 pm
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Default Re: The Thyroid Thread

Originally Posted by bundy
Hi all, just spent some hours reading this thread, and still haven't reached the end of it, but thought I'd post anyway...

I also have an underactive thyroid, diagnosed when I was 24, completely out of the blue after a 'thyroid storm', although I suspect the signs were there for longer and various GPs just put them down to IBS, being run down, or 'something viral'. My thyroid function went downhill very rapidly but was handled badly by my GP who refused to believe that a 24 year old with no family history of thyroid disorder could have an underactive thyroid. It was only after two weeks of sleeping for 22 hours a day and then collapsing on the 100 metre walk to the local shop that I was referred to a consultant. Seven years later and I'm now on 200mcg of thyroxine and feeling fine. Here are some thoughts...

GPs know a lot about thyroid disorders, but some know more than others, and few of them are specialists. At the first sign of problems, I'd push for a referral to a specialist/consultant. I've found that many GPs are obsessed with ranges, whereas it's more important to find someone who treats according to ranges and symptoms. I have often had debilitating symptoms when only just out of the normal range, or even when just in the normal range. It's a range - not everyone will fit into it. My current GP always listens to my symptoms and general well-being as well as looking at my blood test results.

Be prepared for the long haul. It took a good two years for my thyroid to settle, and to find the right dose. Two years of fortnightly blood tests and monthly outpatient appointments, including investigation for a pituitary tumour. It was dispiriting, but worth it in the end. And even though it took that long to sort out, I was already feeling better than I had been within a couple of months of starting treatment.

Face the fact that you will no longer be able to eat what you like without noticing it on the scales, even when sucessfully treated. Although I just see this as a good reason to ensure that I eat a healthy diet and do plenty of exercise (without overdoing it if I'm a bit under). I have a BMI of about 19 at the moment, so it is possible to keep the weight down, although I do work very hard to achieve it, and can pile on the pounds in no time at all if I don't pay attention, or if my function is low.

I don't know how old Nic is, or whether you are considering kids, but having a baby can well and truly stuff your thyroid up for a bit and requires additional care during pregnancy and immediately after. I had a baby 6 months ago and had a bumpy time during pregnancy. My thryoid has only just settled back to normal in the last month or so, having been all over the place postnatally.

Get to know your symptoms - write them down - so that you can become more aware of when your thyroid function might be heading up or down. Keep a note of the really tiny things as well as the big things (as well as the usual exhaustion, my eyebrows thin and my voice gets hoarse and 'stuck' in my throat when my function is low, plus I can't hold my hands above my head).

Take every test going, just to be sure, and quiz the consultant on the results. Most of all, get to know your body and what feels right for you and don't hesitate to jump up and down in front of some member of the medical profession until you get someone to take your symptoms as seriously as your point on the T4/T3 range.

And don't give up hope. I remember my consultant telling me that of all the lifelong conditions to get (e.g diabetes, epilepsy etc), hypothyroidism was perhaps *better* than some in that it is treatable (depending on the cause, of course), and you can get your health pretty much back to normal with a bit of patience and persistence. I think that's true, and I for one feel fine now, even if it did take a while to get to this point. In my mind, you never feel as ill as you did before you were diagnosed, if that makes sense.

Sorry if I'm just repeating what others have said - as I mentioned above, I didn't have time to read all the posts.

Good luck!
Hello Bundy. That's a great post... and you're absolutely right about being able to get back to normal with persistence and patience... I remember feeling so incredibly unwell and not myself and wondering if it was possible to feel better. I nearly died having my son as no-one had picked up on my thyroid condition and I went through hell trying to keep myself on a level whilst understanding what was going on, trying to get a diagnosis, and then getting knocked back from treatment. I did all that with a partner who thought I was just being a bitch () though I know from asking others that their condition truly affected their relationships because their partners 'feared' what was happening, or just didn't understand it. I heard recently he's told people I purposely 'risked my son's life' by wanting to have a natural birth with my son, yet with an undiagnosed thyroid condition, amazingly we came out of it alive. Incredibly hurtful. Blaming me for the birth, like it was my fault no-one had tested my thyroid...
Mine didn't want me to have this. On the day I walked from the doctor's surgery with my first T4 script, he actually said 'Oh well, at least this medication will rule out hypo and then we can really find out what's happening with you'... words to that affect anyway. (I wrote the actual words down in my journal afterwards because I was so surprised he could have been in such denial about it all) He never came to the doc with me, never helped me push for treatment, criticised my choice of diet over and over (being a beanpole all his life, he never could understand putting on weight, only losing it from his fat head! ) and didn't support me one iota in my push to help myself.
And that's precisely why he's now an ex.
I think Nic's got a great man, who's interested in helping his lovely wife get back to normal and that's such a precious thing. Having a supportive partner who's interested in helping you, rather than proving you wrong, or inadequate makes the world of difference in this.
I've now found someone who does listen to me, asks me questions about this, is interested in how it works and supports me through the dips without criticism and denial. And that is worth its weight in gold.

And you're so right, about not giving up hope. I've lost a load of weight, and am aiming to lose a little more in the future, though I'm happy with myself now... maybe another 20lb. and a bit more toning up. It was hard to do it but I did it. So it is absolutely possible. I joined a weight loss forum and found lots of support and ideas there. And no criticism of my choices.
It's an ongoing thing, this thyroid stuff, but it's totally possible to feel well again, like yourself.

And congratulations on having your lovely babe.
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Old Aug 20th 2008, 10:09 pm
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Default Re: The Thyroid Thread

Originally Posted by bundy
I don't know how old Nic is, or whether you are considering kids, but having a baby can well and truly stuff your thyroid up for a bit and requires additional care during pregnancy and immediately after.
Youngest has just turned 16, eldest will be 18 in a few weeks. I've had a vasectomy.

I'm hoping we'll be right on that one! ...

Originally Posted by TiddlyPom
I think Nic's got a great man,
I do too! ... ... but seriously, it's all part of the package, for good and for bad!

Nic goes thru my troubles with me, and vice versa! ... HAS to be that way ...
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Old Aug 20th 2008, 10:16 pm
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Originally Posted by PaulandNic
Youngest has just turned 16, eldest will be 18 in a few weeks. I've had a vasectomy.

I'm hoping we'll be right on that one! ...


I do too! ... ... but seriously, it's all part of the package, for good and for bad!

Nic goes thru my troubles with me, and vice versa! ... HAS to be that way ...
Yes, it does.
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Old Aug 21st 2008, 4:10 am
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Default Re: The Thyroid Thread

Hiya All

I've just spent 7hrs reading all these posts and all the links to the other sites after clicking on the thread to see if any of my symptoms matched any of yours.

You've all convinced me to go and see the doc and ask to be tested for everything thyroid related.
I have read somewhere that medicare only pay for the TSH test unless any problems have been diagnosed.
Do you think if I offer to pay for them the doc will do them for me?

My main symptoms are weight gain, which has got worse since arriving in oz, 2 stone in 7 mths and I dont each the chocolate or any indian/chinese takeaways anymore, tiredness, falling asleep during the day (and I have at least 10hrs at night), feeling down all the while but the worst is the cold!
Since arriving in Sydney in Jan its the one thing that me and hubby fall out over. We have electric ducted heating which I have on all day (I dont work) and I still dont think its warm enough.

Since reading this today I also realise my back kills first thing in the morning, its what forces me out of bed and I can hardly make it up the stairs! Just thought I was getting old and unfit (I'm 41 btw).

I was tested years ago and it was negative.
I am really worried about going to the docs incase they just think I'm just trying to find an excuse for being fat.

Anyhow, you've all inspired me to go. Trouble is I've felt like this for so long now it just seems normal.

Just wanted to say 'Thanks for the posts'

Poppy x
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Old Aug 21st 2008, 4:17 am
  #368  
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Default Re: The Thyroid Thread

Sounds a classic case, Poppy.

Take your temperature on a daily basis for a while and I think you'll find it's about 34 or 35 - tell your husband THAT'S why your electricity bill is so big (I've just been through this, can you tell? )
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Old Aug 21st 2008, 9:11 am
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Default Re: The Thyroid Thread

Originally Posted by poppyjasper
Hiya All

I've just spent 7hrs reading all these posts and all the links to the other sites after clicking on the thread to see if any of my symptoms matched any of yours.

You've all convinced me to go and see the doc and ask to be tested for everything thyroid related.
I have read somewhere that medicare only pay for the TSH test unless any problems have been diagnosed.
Do you think if I offer to pay for them the doc will do them for me?

My main symptoms are weight gain, which has got worse since arriving in oz, 2 stone in 7 mths and I dont each the chocolate or any indian/chinese takeaways anymore, tiredness, falling asleep during the day (and I have at least 10hrs at night), feeling down all the while but the worst is the cold!
Since arriving in Sydney in Jan its the one thing that me and hubby fall out over. We have electric ducted heating which I have on all day (I dont work) and I still dont think its warm enough.

Since reading this today I also realise my back kills first thing in the morning, its what forces me out of bed and I can hardly make it up the stairs! Just thought I was getting old and unfit (I'm 41 btw).

I was tested years ago and it was negative.
I am really worried about going to the docs incase they just think I'm just trying to find an excuse for being fat.

Anyhow, you've all inspired me to go. Trouble is I've felt like this for so long now it just seems normal.

Just wanted to say 'Thanks for the posts'

Poppy x
All sounds familiar Poppy.....

I would see if you can pay for the tests - and remember to get the whole batch done, not just TSH but also T4 and T3 as you need the complete picture to work out what's going on. Also worth having a CBC in case there is anything else causing problems.

And bear in mind that thyroid disorders affect every single organ and function in the body, so if yours is on the blink then it's no wonder you're feeling bab and need the heating turned up a notch!

I know exactly what you mean about not knowing what's normal any more cos it's being going on so long...thing is, if you read back what you've written, you'll see that what you describe is not normal! And if you do have a thyroid disorder which is treated, the relief and sense of wellness you'll feel is nothing short of amazing.

Good luck!
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Old Aug 22nd 2008, 4:00 pm
  #370  
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Default Re: The Thyroid Thread

I went for my hospital appointment Thursday (yesterday) and would you believe it, they had sent me to the wrong consultant which could do nothing for me and so i now have to go back to the doctors again to sort it all out and be sent to the right consultant.
The thing is i now have to nurse my symptoms myself until i can get professional help.
After trying to find information myself on how to help my symptoms and ask at numerous chemists i have had no luck in finding out a lot, so i am asking if anyone on BE can help as i am suffering a bit and any information would help i'm sure.
I am starting to feel extremely tired with the thyroid due to not being able to eat the right nutritious food, this is because my HRT has made my gastric reflux worse and the little valve at the bottom of the oesophagus is not working properly, so as everything has been thrown out of sink i am feeling worse with my thyroid.
I am finding it worse to have dairys e.g milk, cheese,chocolate and have been trying to find out what i can replace the milk and cheese with but still get the nutrition i need for the thyroid.
I have read goats milk and cheese and also just to have skimmed milk not full could be a possibility. Would that be right?
So i am at a ponder what to do for the best as my weight has started to drop quite fast.
Any help much appreciated.
Thank you.
aus
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Old Aug 23rd 2008, 12:32 am
  #371  
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Default Re: The Thyroid Thread

aus, I feel for you. I'm underactive, on HRT, and amongst other things, have osteoporosis so recently went on scarily strong meds for that, and I vary from feeling sick to having a totally debilitating headache. I feel like I've gone back 3 years.

I've got an appointment with Tiddly's doc as I'm not happy with the care I'm getting here (recent arrival, and they've totally changed my regime) but that's not until late September so I'm having to manage myself until then.

I also have food intolerances - I've been tested for them, maybe you should too? I've struggled with getting enough protein, especially for breakfast as I can't take cow's milk or eggs, but I've recently found sheep's yoghurt in my local grocers; it tastes far better than soy (which we should all limit anyway) and I seem to be tolerating it very well. I've also started eating goat's cheese occasionally, and it's so good to be able to eat cheese again after avoiding it for 3 years - it was hard to find stuff like this in Asia so I'm loving Australia!

You should get most of your nutrients from fruit and veg, but I take a few supplements as nobody has the perfect diet.

If you do fancy a bit of chocolate now and then, try Green and Blacks Organic Dark Chocolate 70% as I've found it's one with the least amount of bad stuff that actually tastes good.

edit: Oh and yesterday I bought some Oat Milk. Now plucking up the courage to try it...
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Old Aug 23rd 2008, 6:29 am
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To update with Nic's situ.

Went back to GP today and asked for ALL tests to be done and are going to get them done tomorrow ...

Nic said to the GP that she STILL hasn't lost any weight and still sleeps a lot! He asked if she felt depressed and she explained that she's mentally fine, and is on AD's anyway. He said they could be causing the weight gain or possibly her age (39). At the same time he didn't want to speculate as it's been so long since last test was done, and we'll speak again when we return with fresh blood tests!

I'll report with test results once we have them.
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Old Aug 23rd 2008, 8:22 am
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Default Re: The Thyroid Thread

Originally Posted by PaulandNic
To update with Nic's situ.

Went back to GP today and asked for ALL tests to be done and are going to get them done tomorrow ...

Nic said to the GP that she STILL hasn't lost any weight and still sleeps a lot! He asked if she felt depressed and she explained that she's mentally fine, and is on AD's anyway. He said they could be causing the weight gain or possibly her age (39). At the same time he didn't want to speculate as it's been so long since last test was done, and we'll speak again when we return with fresh blood tests!

I'll report with test results once we have them.
That's excellent news Paul. Well done on asking for the tests....

I'm sure you'll get to the bottom of this real soon. Let us know when you have the results.

Hugs to Nic. And to yourself for being such a supportive partner to her.

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Old Aug 23rd 2008, 11:59 am
  #374  
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Default Re: The Thyroid Thread

Originally Posted by Seasider
aus, I feel for you. I'm underactive, on HRT, and amongst other things, have osteoporosis so recently went on scarily strong meds for that, and I vary from feeling sick to having a totally debilitating headache. I feel like I've gone back 3 years.

I've got an appointment with Tiddly's doc as I'm not happy with the care I'm getting here (recent arrival, and they've totally changed my regime) but that's not until late September so I'm having to manage myself until then.

I also have food intolerances - I've been tested for them, maybe you should too? I've struggled with getting enough protein, especially for breakfast as I can't take cow's milk or eggs, but I've recently found sheep's yoghurt in my local grocers; it tastes far better than soy (which we should all limit anyway) and I seem to be tolerating it very well. I've also started eating goat's cheese occasionally, and it's so good to be able to eat cheese again after avoiding it for 3 years - it was hard to find stuff like this in Asia so I'm loving Australia!

You should get most of your nutrients from fruit and veg, but I take a few supplements as nobody has the perfect diet.

If you do fancy a bit of chocolate now and then, try Green and Blacks Organic Dark Chocolate 70% as I've found it's one with the least amount of bad stuff that actually tastes good.

edit: Oh and yesterday I bought some Oat Milk. Now plucking up the courage to try it...
Thankyou Seasider for the help.
It is being a bit of a nightmare in not knowing what to eat and drink at the moment.
I was told it could be the HRT tablets interfering with the gastric reflux condition.
Did you put on weight when you started the HRT? I did but am now loosing it as i just cant eat much until i can find the right food.
I have just started goats milk yesterday but find it a bit thick and too creamy for the throat, so i am next going to try goats milk semi skimmed or skimmed and see if that is any different.
You mentioned oat milk, that sound a good idea as i have been buying oat cereal and biscuits as the doctors told me to have oat things.
Just got to find the right milk to have with the cereal.
Eggs did not occur to me, just thought about the milk and cheese, don't know what i am going to do about eggs?
I am getting to the point of being used to no appetite as i cant eat anything.
what did you have to do for the food intolerance tests? I might mention that to the doctors if it still continues once i have got the food situation under control.
One thing i do miss is my chocolate.
Wish you all the best.
aus.
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Old Aug 23rd 2008, 12:31 pm
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Default Re: The Thyroid Thread

Originally Posted by ausi dream
Thankyou Seasider for the help.
It is being a bit of a nightmare in not knowing what to eat and drink at the moment.
I was told it could be the HRT tablets interfering with the gastric reflux condition.
Did you put on weight when you started the HRT? I did but am now loosing it as i just cant eat much until i can find the right food.
I have just started goats milk yesterday but find it a bit thick and too creamy for the throat, so i am next going to try goats milk semi skimmed or skimmed and see if that is any different.
You mentioned oat milk, that sound a good idea as i have been buying oat cereal and biscuits as the doctors told me to have oat things.
Just got to find the right milk to have with the cereal.
Eggs did not occur to me, just thought about the milk and cheese, don't know what i am going to do about eggs?
I am getting to the point of being used to no appetite as i cant eat anything.
what did you have to do for the food intolerance tests? I might mention that to the doctors if it still continues once i have got the food situation under control.
One thing i do miss is my chocolate.
Wish you all the best.
aus.
Eggs are good for you! Don't stop eating those. Just eat healthy...
and try rice milk. Found it much better than goat.
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