Novocastrian

Me 3. My respect Editha as ever.

Editha

I've now got a diagnosis of Parkinson's. I had to pay for it. Apart from seeing a consultant more quickly, by paying I was able to see a Parkinson's specialist, rather than any neurologist.

The neuro reckons I have a straightforward case, and meds will give me about 10 years with a reasonable quality of life. After that it will get more difficult.

I only got the diagnosis yesterday and I'm surprised to find myself feeling rather emotional about it today, because I've strongly suspected that I have Parkinson's for the last 2 years, so the diagnosis was expected.

NiHao

Edith,
It is completely natural to feel emotional, suspecting something is different to the reality of having it confirmed. It's a lot to take in, there is a grieving process as you come to terms with it. From what I know of you from BE I'm sure that as you adjust to the diagnosis you will figure out the best plan of treatment etc. to give you really good quality of life for as long as possible - you are a "do-er" Editha you have been dealt a blow but you aren't one to roll over there are still many good years ahead. Sending you love and hugs x

Novocastrian

I'm sorry to hear this Editha. I think we're roughly of an age but I'm 67 and my mother was diagnosed with Parkinsons when she was my present age.

She lived until just after her 91st birthday, and except for the last couple of years she managed pretty well. All the best for a long future.

Editha

Thanks for that Novo. Just what I needed.

islandwoman120

Editha - my father had Parkinson's from his late 50s and until he died at the age of 83, he had led a full and busy life. The last three years were hard on him as he had to give up his hobby of photography, and stop driving. But that meant he had 30 years of living to the fullest before giving in. That's a long time. So don't you give up. I had no idea you were living near to Exeter - I am in Dawlish, the other side of Starcross. It's a beautiful area near the Exe and the English Channel - lots of wildlife, lots of birds. All the best.

Editha

I'm actually living on the north Devon coast. Our nearest town is Bideford.

Thanks for the information about your dad. My own father only lived 5 years after diagnosis, but he was 78 when diagnosed.

islandwoman120

I used to live in Bideford when I was 19 - 20. I barely remember it - hills, and a river, and the costal area was very windy and wild.

Keep positive.